Cargando…

Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales

INTRODUCTION: Worldwide large cohort studies have invested in community engagement to promote studies and aid recruitment. HealthWise Wales, a national population study, aims to create a register of ‘research ready’ participants and provide long-term follow up data on health behaviours, outcomes and...

Descripción completa

Detalles Bibliográficos
Autores principales:	Townson, Julia, Davies, Jan, Hurt, Lisa, Ashfield-Watt, Pauline, Paranjothy, Shantini
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Swansea University 2020
Materias:	Population Data Science
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8110888/ https://www.ncbi.nlm.nih.gov/pubmed/34007884 http://dx.doi.org/10.23889/ijpds.v5i3.1356

Ejemplares similares

Cohort profile: HealthWise Wales. A research register and population health data platform with linkage to National Health Service data sets in Wales
por: Hurt, Lisa, et al.
Publicado: (2019)

Protocol for implementing the concept of citizen scientists for HealthWise Wales: a national population study
por: Townson, Julia
Publicado: (2017)

Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales – protocol for platform development
por: Trefan, L, et al.
Publicado: (2019)

Public involvement and engagement in primary and emergency care research: the story from PRIME Centre Wales
por: Evans, Bridie Angela, et al.
Publicado: (2020)

Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study
por: Bandyopadhyay, Amrita, et al.
Publicado: (2022)

Impact of COVID-19 pandemic on community medication dispensing: a national cohort analysis in Wales, UK
por: Torabi, Fatemeh, et al.
Publicado: (2022)

Including household effects in Big Data research: the experience of building a longitudinal residence algorithm using linked administrative data in Wales
por: Tingay, Karen Susan, et al.
Publicado: (2018)

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research
por: Aitken, Mhairi, et al.
Publicado: (2019)

Mapping population vulnerability and community support during COVID-19: a case study from Wales
por: Di Cara, Nina H, et al.
Publicado: (2021)

A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019
por: Johnson, Rhodri D., et al.
Publicado: (2022)

Validating the QCOVID risk prediction algorithm for risk of mortality from COVID-19 in the adult population in Wales, UK
por: Lyons, Jane, et al.
Publicado: (2022)

Data resource profile: children looked after administrative records in Wales
por: Allnatt, Gemma, et al.
Publicado: (2022)

Public involvement & engagement in the work of a data safe haven: a case study of the SAIL Databank
por: Jones, Kerina H, et al.
Publicado: (2020)

Data resource: Children receiving care and support and children in need, administrative records in Wales
por: Lee, Alexandra, et al.
Publicado: (2022)

Public engagement can change your research, but how can it change your research institution? ICES case study
por: Paul, Jenine, et al.
Publicado: (2020)

Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada
por: Teng, Jack, et al.
Publicado: (2019)

Public Involvement & Engagement in health inequalities research on COVID-19 pandemic: a case study of CIDACS/FIOCRUZ BAHIA
por: dos Anjos Fonseca, Adalton, et al.
Publicado: (2023)

Identifying children with Cystic Fibrosis in population-scale routinely collected data in Wales: A Retrospective Review
por: Griffiths, R, et al.
Publicado: (2020)

A retrospective epidemiological study of type 1 diabetes mellitus in wales, UK between 2008 and 2018
por: Rafferty, James, et al.
Publicado: (2021)

Identifying researcher learning needs to develop online training for UK researchers working with administrative data: CENTRIC training
por: Lugg-Widger, Fiona, et al.
Publicado: (2022)

Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
por: Schlüter, Daniela K., et al.
Publicado: (2022)

A population level study of SARS-CoV-2 prevalence amongst people experiencing homelessness in Wales, UK
por: Thomas, Ian, et al.
Publicado: (2021)

Improving occupational health for health workers in a pilot hospital by application of the HealthWISE international tool: An interview and observation study in China
por: Zhang, Min, et al.
Publicado: (2022)

Benefits of not smoking during pregnancy for non-Aboriginal women and their babies in New South Wales, Australia: a record linkage study
por: Patterson, Jillian A., et al.
Publicado: (2021)

Reporting of gestational diabetes and other maternal medical conditions: validation of routinely collected hospital data from New South Wales, Australia
por: Baldwin, Heather J, et al.
Publicado: (2021)

Establishing the impact of COVID-19 on the health outcomes of domiciliary care workers in Wales using routine data: a protocol for the OSCAR study
por: Lugg-Widger, Fiona, et al.
Publicado: (2021)

Student achievement trajectories in Ontario: Creating and validating a province-wide, multi-cohort and longitudinal database
por: Sinclair, Jeanne, et al.
Publicado: (2023)

Evaluation of the effectiveness of the Family Nurse Partnership home visiting programme in first time young mothers in Scotland: a protocol for a natural experiment
por: Lugg-Widger, F, et al.
Publicado: (2020)

Empowering Health Workers to Protect their Own Health: A Study of Enabling Factors and Barriers to Implementing HealthWISE in Mozambique, South Africa, and Zimbabwe
por: Wilcox, Elizabeth S., et al.
Publicado: (2020)

Give and take? The unexpected benefits of public engagement as an end-in-itself social practice in the Aberdeen Children of the 1950s cohort study.
por: Adamczyk, Krzysztof, et al.
Publicado: (2022)

Drinking beer, wine or spirits – does it matter for inequalities in alcohol-related hospital admission? A record-linked longitudinal study in Wales
por: Gartner, Andrea, et al.
Publicado: (2019)

Childhood Outcomes in Children with and without Cardiac Echogenic Foci: An Electronic Birth Cohort Study in Wales, UK
por: Hurt, Lisa, et al.
Publicado: (2023)

Impact through engagement: Co-production of administrative data research and the approach of the Administrative Data Research Centre Northern Ireland
por: Nelson, Elizabeth, et al.
Publicado: (2020)

Assistive technology access in longitudinal datasets: a global review
por: Danemayer, Jamie, et al.
Publicado: (2023)

Participant acceptability of digital footprint data collection strategies: an exemplar approach to participant engagement and involvement in the ALSPAC birth cohort study
por: Shiells, Kate, et al.
Publicado: (2022)

A longitudinal cohort study of participation in the Boys & Girls Clubs of Winnipeg
por: Enns, Jennifer E., et al.
Publicado: (2022)

Trust, security and public interest: striking the balance A narrative review of previous literature on public attitudes towards the sharing, linking and use of administrative data for research
por: Waind, Elizabeth
Publicado: (2020)

Longitudinal child data: What can be gained by linking administrative data and cohort data?
por: Findlay, Leanne C, et al.
Publicado: (2018)

Forensic evaluation of the AmpFlSTR(®) NGM(™) loci in Lodz region of Poland population sample
por: Jedrzejczyk, Maciej, et al.
Publicado: (2013)

Forensic genetic analysis of population of Madhya Pradesh with PowerPlex Fusion 6C(™) Multiplex System
por: Dixit, Shivani, et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_qaog2t8moja0201belmgvvhuvq