The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2

BACKGROUND: Rare and severe neurological disorders in childhood not only heavily affect the life perspective of the patients, but also their caregivers and families. The aim of this study was to investigate the impact of such diseases on the family, especially on the quality of life and life perspec...

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Detalles Bibliográficos
Autores principales: Ammann-Schnell, Louisa, Groeschel, Samuel, Kehrer, Christiane, Frölich, Saskia, Krägeloh-Mann, Ingeborg
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8111977/
https://www.ncbi.nlm.nih.gov/pubmed/33971942
http://dx.doi.org/10.1186/s13023-021-01828-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8111977/
https://www.ncbi.nlm.nih.gov/pubmed/33971942
http://dx.doi.org/10.1186/s13023-021-01828-y

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