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The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2
BACKGROUND: Rare and severe neurological disorders in childhood not only heavily affect the life perspective of the patients, but also their caregivers and families. The aim of this study was to investigate the impact of such diseases on the family, especially on the quality of life and life perspec...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8111977/ https://www.ncbi.nlm.nih.gov/pubmed/33971942 http://dx.doi.org/10.1186/s13023-021-01828-y |