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Health-related quality of life in children and adolescents living with Gaucher disease and their parents
Objective: The health-related quality of life (HRQoL), clinical status and perceived burden of disease in children and adolescents with Gaucher Disease (GD) were assessed. Method: A Spanish multicenter collaboration study involving 13 hospitals was performed to evaluate pediatric patients with GD (n...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Routledge
2018
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8114346/ https://www.ncbi.nlm.nih.gov/pubmed/34040822 http://dx.doi.org/10.1080/21642850.2018.1462705 |