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Health-related quality of life in children and adolescents living with Gaucher disease and their parents

Objective: The health-related quality of life (HRQoL), clinical status and perceived burden of disease in children and adolescents with Gaucher Disease (GD) were assessed. Method: A Spanish multicenter collaboration study involving 13 hospitals was performed to evaluate pediatric patients with GD (n...

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Detalles Bibliográficos
Autores principales: Remor, Eduardo, Baldellou, Antonio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Routledge 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8114346/
https://www.ncbi.nlm.nih.gov/pubmed/34040822
http://dx.doi.org/10.1080/21642850.2018.1462705

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