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The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis

INTRODUCTION: End-of-life care issues for end-stage renal disease (ESRD) patients are still not fully highlighted in trials and clinical practice. Due to the inadequacy, exploring patients' knowledge, perceptions, and preferences is essential to improve the delivery of care. This was performed...

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Autores principales: Rozi, Nur Raziana Binti, Ali, Wan Ahmad Syahril Rozli Wan, Draman, Che Rosle Bin, Pasi, Hafizah Binti
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8121235/
https://www.ncbi.nlm.nih.gov/pubmed/34035625
http://dx.doi.org/10.4103/IJPC.IJPC_221_20
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author Rozi, Nur Raziana Binti
Ali, Wan Ahmad Syahril Rozli Wan
Draman, Che Rosle Bin
Pasi, Hafizah Binti
author_facet Rozi, Nur Raziana Binti
Ali, Wan Ahmad Syahril Rozli Wan
Draman, Che Rosle Bin
Pasi, Hafizah Binti
author_sort Rozi, Nur Raziana Binti
collection PubMed
description INTRODUCTION: End-of-life care issues for end-stage renal disease (ESRD) patients are still not fully highlighted in trials and clinical practice. Due to the inadequacy, exploring patients' knowledge, perceptions, and preferences is essential to improve the delivery of care. This was performed using questionnaires which have been a widely useful tool in medical researches. Up to date, there was no published, validated questionnaire developed in Malaysia for such purposes yet. OBJECTIVE: This study aimed to develop and validate the questionnaire on end-of-life care knowledge, perceptions, and preferences among hemodialysis (HD) patients. SUBJECT AND METHODS: A cross-sectional study was conducted among 92 HD patients from 14 centers. It involved four phases including (i) developing the questionnaire and pretesting, (ii) improving and editing and redistribution to respondents for the pilot study, (iii) factor analysis (FA), and (iv) internal consistency reliability testing. RESULTS: The result of FA with varimax rotation performed identified three domains for the 41 items, with 10–20 items in each domain. All the 41 analyzed items had a good factor loading of more than 0.4 with the lowest value of 0.421 and were nicely fit into three respective domains: knowledge, perceptions, and preferences. Internal consistency reliability analysis Cronbach's α values were between 0.5 and 0.7 for all domains, higher than the level set for this study (0.5). CONCLUSION: The questionnaire was successfully validated and considered a useful tool in describing ESRD patients' end-of-life care knowledge, perceptions, and preferences.
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spelling pubmed-81212352021-05-24 The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis Rozi, Nur Raziana Binti Ali, Wan Ahmad Syahril Rozli Wan Draman, Che Rosle Bin Pasi, Hafizah Binti Indian J Palliat Care Original Article INTRODUCTION: End-of-life care issues for end-stage renal disease (ESRD) patients are still not fully highlighted in trials and clinical practice. Due to the inadequacy, exploring patients' knowledge, perceptions, and preferences is essential to improve the delivery of care. This was performed using questionnaires which have been a widely useful tool in medical researches. Up to date, there was no published, validated questionnaire developed in Malaysia for such purposes yet. OBJECTIVE: This study aimed to develop and validate the questionnaire on end-of-life care knowledge, perceptions, and preferences among hemodialysis (HD) patients. SUBJECT AND METHODS: A cross-sectional study was conducted among 92 HD patients from 14 centers. It involved four phases including (i) developing the questionnaire and pretesting, (ii) improving and editing and redistribution to respondents for the pilot study, (iii) factor analysis (FA), and (iv) internal consistency reliability testing. RESULTS: The result of FA with varimax rotation performed identified three domains for the 41 items, with 10–20 items in each domain. All the 41 analyzed items had a good factor loading of more than 0.4 with the lowest value of 0.421 and were nicely fit into three respective domains: knowledge, perceptions, and preferences. Internal consistency reliability analysis Cronbach's α values were between 0.5 and 0.7 for all domains, higher than the level set for this study (0.5). CONCLUSION: The questionnaire was successfully validated and considered a useful tool in describing ESRD patients' end-of-life care knowledge, perceptions, and preferences. Wolters Kluwer - Medknow 2021 2021-02-17 /pmc/articles/PMC8121235/ /pubmed/34035625 http://dx.doi.org/10.4103/IJPC.IJPC_221_20 Text en Copyright: © 2021 Indian Journal of Palliative Care https://creativecommons.org/licenses/by-nc-sa/4.0/This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Rozi, Nur Raziana Binti
Ali, Wan Ahmad Syahril Rozli Wan
Draman, Che Rosle Bin
Pasi, Hafizah Binti
The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title_full The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title_fullStr The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title_full_unstemmed The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title_short The Validation of Questionnaire on End-of-Life Care Knowledge, Perceptions, and Preferences among End-Stage Renal Disease Patients on Hemodialysis
title_sort validation of questionnaire on end-of-life care knowledge, perceptions, and preferences among end-stage renal disease patients on hemodialysis
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8121235/
https://www.ncbi.nlm.nih.gov/pubmed/34035625
http://dx.doi.org/10.4103/IJPC.IJPC_221_20
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