Cargando…

A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland

BACKGROUND: According to the European Association for Palliative Care, decisions regarding palliative sedation should not be made in response to requests for assisted dying, such as euthanasia or assisted suicide. However, several studies show that continuous deep sedation until death (CDSUD) – a pa...

Descripción completa

Detalles Bibliográficos
Autores principales: Tomczyk, Martyna, Dieudonné-Rahm, Nathalie, Jox, Ralf J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8122537/
https://www.ncbi.nlm.nih.gov/pubmed/33990204
http://dx.doi.org/10.1186/s12904-021-00761-y
_version_ 1783692642458009600
author Tomczyk, Martyna
Dieudonné-Rahm, Nathalie
Jox, Ralf J.
author_facet Tomczyk, Martyna
Dieudonné-Rahm, Nathalie
Jox, Ralf J.
author_sort Tomczyk, Martyna
collection PubMed
description BACKGROUND: According to the European Association for Palliative Care, decisions regarding palliative sedation should not be made in response to requests for assisted dying, such as euthanasia or assisted suicide. However, several studies show that continuous deep sedation until death (CDSUD) – a particular form of sedation – has been considered as an alternative to these practices in some countries. In Switzerland, where assisted suicide is decriminalized and CDSUD is not legally regulated, no studies have comprehensively investigated their relation. Our study aimed to identify and describe the experience among palliative care physicians of CDSUD as a potential alternative to assisted suicide in the French-speaking part of Switzerland. METHODS: We performed an exploratory multicentre qualitative study based on interviews with palliative care physicians in the French-speaking part of Switzerland and conducted linguistic and thematic analysis of all interview transcripts. The study is described in accordance with COREQ guidelines. RESULTS: We included 10 interviews conducted in four palliative care units. Our linguistic analysis shows four main types of sedation, which we called ‘rapid CDSUD’, ‘gradual CDSUD’, ‘temporary sedation’ and ‘intermittent sedation’. CDSUD (rapid or gradual) was not considered an alternative to assisted suicide, even if a single situation has been reported. In contrast, ‘temporary’ or ‘intermittent sedation’, although not medically indicated, was sometimes introduced in response to a request for assisted suicide. This was the fact when there were barriers to an assisted suicide at home (e.g., when transfer home was impossible or the patient wished not to burden the family). CONCLUSION: These preliminary results can guide clinical, ethical, linguistic and legal reflection in this field and be used to explore this question more deeply at the national and international levels in a comparative, interdisciplinary and multiprofessional approach. They can also be useful to update Swiss clinical guidelines on palliative sedation in order to include specific frameworks on various sedation protocols and sedation as an alternative to assisted suicide. Potential negative impacts of considering palliative sedation as an alternative to assisted suicide should be nuanced by open and honest societal debate.
format Online
Article
Text
id pubmed-8122537
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-81225372021-05-17 A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland Tomczyk, Martyna Dieudonné-Rahm, Nathalie Jox, Ralf J. BMC Palliat Care Research BACKGROUND: According to the European Association for Palliative Care, decisions regarding palliative sedation should not be made in response to requests for assisted dying, such as euthanasia or assisted suicide. However, several studies show that continuous deep sedation until death (CDSUD) – a particular form of sedation – has been considered as an alternative to these practices in some countries. In Switzerland, where assisted suicide is decriminalized and CDSUD is not legally regulated, no studies have comprehensively investigated their relation. Our study aimed to identify and describe the experience among palliative care physicians of CDSUD as a potential alternative to assisted suicide in the French-speaking part of Switzerland. METHODS: We performed an exploratory multicentre qualitative study based on interviews with palliative care physicians in the French-speaking part of Switzerland and conducted linguistic and thematic analysis of all interview transcripts. The study is described in accordance with COREQ guidelines. RESULTS: We included 10 interviews conducted in four palliative care units. Our linguistic analysis shows four main types of sedation, which we called ‘rapid CDSUD’, ‘gradual CDSUD’, ‘temporary sedation’ and ‘intermittent sedation’. CDSUD (rapid or gradual) was not considered an alternative to assisted suicide, even if a single situation has been reported. In contrast, ‘temporary’ or ‘intermittent sedation’, although not medically indicated, was sometimes introduced in response to a request for assisted suicide. This was the fact when there were barriers to an assisted suicide at home (e.g., when transfer home was impossible or the patient wished not to burden the family). CONCLUSION: These preliminary results can guide clinical, ethical, linguistic and legal reflection in this field and be used to explore this question more deeply at the national and international levels in a comparative, interdisciplinary and multiprofessional approach. They can also be useful to update Swiss clinical guidelines on palliative sedation in order to include specific frameworks on various sedation protocols and sedation as an alternative to assisted suicide. Potential negative impacts of considering palliative sedation as an alternative to assisted suicide should be nuanced by open and honest societal debate. BioMed Central 2021-05-14 /pmc/articles/PMC8122537/ /pubmed/33990204 http://dx.doi.org/10.1186/s12904-021-00761-y Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Tomczyk, Martyna
Dieudonné-Rahm, Nathalie
Jox, Ralf J.
A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title_full A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title_fullStr A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title_full_unstemmed A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title_short A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
title_sort qualitative study on continuous deep sedation until death as an alternative to assisted suicide in switzerland
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8122537/
https://www.ncbi.nlm.nih.gov/pubmed/33990204
http://dx.doi.org/10.1186/s12904-021-00761-y
work_keys_str_mv AT tomczykmartyna aqualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland
AT dieudonnerahmnathalie aqualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland
AT joxralfj aqualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland
AT tomczykmartyna qualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland
AT dieudonnerahmnathalie qualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland
AT joxralfj qualitativestudyoncontinuousdeepsedationuntildeathasanalternativetoassistedsuicideinswitzerland