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Development of social contact and loneliness measures with validation in social prescribing

AIMS: This paper describes two patient-reported measures of social contact and loneliness, which are closely related concepts. The first measure (R-Outcomes Social Contact measure) was developed from scratch, based on customer needs and literature review. It covers emotional and social aspects using...

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Autores principales: Benson, Tim, Seers, Helen, Webb, Nicola, McMahon, Philippa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8127978/
https://www.ncbi.nlm.nih.gov/pubmed/33990393
http://dx.doi.org/10.1136/bmjoq-2020-001306
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author Benson, Tim
Seers, Helen
Webb, Nicola
McMahon, Philippa
author_facet Benson, Tim
Seers, Helen
Webb, Nicola
McMahon, Philippa
author_sort Benson, Tim
collection PubMed
description AIMS: This paper describes two patient-reported measures of social contact and loneliness, which are closely related concepts. The first measure (R-Outcomes Social Contact measure) was developed from scratch, based on customer needs and literature review. It covers emotional and social aspects using positive terms. The second measure (R-Outcomes Loneliness measure) is adapted from the GSS Loneliness Harmonised Standard. Both measures are patient-reported outcome measures, based on patients’ own perception of how they feel. METHOD: This development started in 2016 in response to customers’ requests to measure social contact/loneliness for patients in social prescribing projects. Both measures are compared with three other loneliness measures (the GSS Loneliness Harmonised Standard, De Jong Gierveld and Campaign to End Loneliness). Both measures are short (36 and 21 words, respectively). Mean improvement is reported as a positive number on a 0–100 scale (where high is good). We tested the psychometric performance and construct validity of the R-Outcomes Social Contact measure using secondary analysis of anonymised data collected before and after social prescribing interventions in one part of Southern England. RESULTS: In the validation study, 728 responses, collected during 2019–2020, were analysed. 90% were over 70 years old and 62% women. Cronbach’s α=0.76, which suggests that it is appropriate to use a single summary score. Mean Social Contact scores before and after social prescribing intervention were 59.9 (before) and 66.7 (after, p<0.001). Exploratory factor analysis shows that measures for social contact, health status, health confidence, patient experience, personal well-being, medication adherence and social determinants of health are correlated but distinct factors. Construct validation shows that the results are consistent with nine hypotheses, based on the loneliness literature. CONCLUSION: The R-Outcomes Social Contact measure has good psychometric and construct validation results in a population referred to social prescribing. It is complementary to other R-Outcomes measures.
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spelling pubmed-81279782021-05-26 Development of social contact and loneliness measures with validation in social prescribing Benson, Tim Seers, Helen Webb, Nicola McMahon, Philippa BMJ Open Qual Original Research AIMS: This paper describes two patient-reported measures of social contact and loneliness, which are closely related concepts. The first measure (R-Outcomes Social Contact measure) was developed from scratch, based on customer needs and literature review. It covers emotional and social aspects using positive terms. The second measure (R-Outcomes Loneliness measure) is adapted from the GSS Loneliness Harmonised Standard. Both measures are patient-reported outcome measures, based on patients’ own perception of how they feel. METHOD: This development started in 2016 in response to customers’ requests to measure social contact/loneliness for patients in social prescribing projects. Both measures are compared with three other loneliness measures (the GSS Loneliness Harmonised Standard, De Jong Gierveld and Campaign to End Loneliness). Both measures are short (36 and 21 words, respectively). Mean improvement is reported as a positive number on a 0–100 scale (where high is good). We tested the psychometric performance and construct validity of the R-Outcomes Social Contact measure using secondary analysis of anonymised data collected before and after social prescribing interventions in one part of Southern England. RESULTS: In the validation study, 728 responses, collected during 2019–2020, were analysed. 90% were over 70 years old and 62% women. Cronbach’s α=0.76, which suggests that it is appropriate to use a single summary score. Mean Social Contact scores before and after social prescribing intervention were 59.9 (before) and 66.7 (after, p<0.001). Exploratory factor analysis shows that measures for social contact, health status, health confidence, patient experience, personal well-being, medication adherence and social determinants of health are correlated but distinct factors. Construct validation shows that the results are consistent with nine hypotheses, based on the loneliness literature. CONCLUSION: The R-Outcomes Social Contact measure has good psychometric and construct validation results in a population referred to social prescribing. It is complementary to other R-Outcomes measures. BMJ Publishing Group 2021-05-14 /pmc/articles/PMC8127978/ /pubmed/33990393 http://dx.doi.org/10.1136/bmjoq-2020-001306 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Original Research
Benson, Tim
Seers, Helen
Webb, Nicola
McMahon, Philippa
Development of social contact and loneliness measures with validation in social prescribing
title Development of social contact and loneliness measures with validation in social prescribing
title_full Development of social contact and loneliness measures with validation in social prescribing
title_fullStr Development of social contact and loneliness measures with validation in social prescribing
title_full_unstemmed Development of social contact and loneliness measures with validation in social prescribing
title_short Development of social contact and loneliness measures with validation in social prescribing
title_sort development of social contact and loneliness measures with validation in social prescribing
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8127978/
https://www.ncbi.nlm.nih.gov/pubmed/33990393
http://dx.doi.org/10.1136/bmjoq-2020-001306
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