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Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care

BACKGROUND: The transition of tracheostomy patients to the home poses many challenges for both the patient and the family. Identifying and understanding the experiences of family caregivers pave the road for discovering and meeting care needs. This study has been aimed to explain the experiences of...

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Autores principales: Daraie, Saied, Hasanvand, Shirin, Goudarzi, Fateme, Rassouli, Maryam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8132866/
https://www.ncbi.nlm.nih.gov/pubmed/34036061
http://dx.doi.org/10.4103/ijnmr.IJNMR_173_20
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author Daraie, Saied
Hasanvand, Shirin
Goudarzi, Fateme
Rassouli, Maryam
author_facet Daraie, Saied
Hasanvand, Shirin
Goudarzi, Fateme
Rassouli, Maryam
author_sort Daraie, Saied
collection PubMed
description BACKGROUND: The transition of tracheostomy patients to the home poses many challenges for both the patient and the family. Identifying and understanding the experiences of family caregivers pave the road for discovering and meeting care needs. This study has been aimed to explain the experiences of family caregivers of patients with a tracheostomy about patient care at home. MATERIALS AND METHODS: This qualitative study was conducted using a conventional content analysis approach from September 2018 to January 2019. Participants included nine family caregivers and one professional caregiver who were selected through purposive sampling method. The in-depth interviews were conducted at home or in health centers using field notes. Data were recorded manually and analyzed using the five-step method proposed by Granehim and Lundman. RESULTS: The data led to the emergence of 1591 initial codes, 23 subcategories, and 6 categories. Categories include the need for training, the need for receiving care support, care challenges, care burden, gaining experience, hope, and inner satisfaction. CONCLUSIONS: In this study, the family caregivers faced with lots of challenges in caring patients with tracheostomy so that they were in needs of training and support from professionals. Although they got skillful in care and endure burden, they were so hopeful and satisfied with their attempts. Hence, there is a need for official nongovernmental organizations with the aim of maintaining care and protecting their families.
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spelling pubmed-81328662021-05-24 Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care Daraie, Saied Hasanvand, Shirin Goudarzi, Fateme Rassouli, Maryam Iran J Nurs Midwifery Res Original Article BACKGROUND: The transition of tracheostomy patients to the home poses many challenges for both the patient and the family. Identifying and understanding the experiences of family caregivers pave the road for discovering and meeting care needs. This study has been aimed to explain the experiences of family caregivers of patients with a tracheostomy about patient care at home. MATERIALS AND METHODS: This qualitative study was conducted using a conventional content analysis approach from September 2018 to January 2019. Participants included nine family caregivers and one professional caregiver who were selected through purposive sampling method. The in-depth interviews were conducted at home or in health centers using field notes. Data were recorded manually and analyzed using the five-step method proposed by Granehim and Lundman. RESULTS: The data led to the emergence of 1591 initial codes, 23 subcategories, and 6 categories. Categories include the need for training, the need for receiving care support, care challenges, care burden, gaining experience, hope, and inner satisfaction. CONCLUSIONS: In this study, the family caregivers faced with lots of challenges in caring patients with tracheostomy so that they were in needs of training and support from professionals. Although they got skillful in care and endure burden, they were so hopeful and satisfied with their attempts. Hence, there is a need for official nongovernmental organizations with the aim of maintaining care and protecting their families. Wolters Kluwer - Medknow 2021-03-05 /pmc/articles/PMC8132866/ /pubmed/34036061 http://dx.doi.org/10.4103/ijnmr.IJNMR_173_20 Text en Copyright: © 2021 Iranian Journal of Nursing and Midwifery Research https://creativecommons.org/licenses/by-nc-sa/4.0/This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Daraie, Saied
Hasanvand, Shirin
Goudarzi, Fateme
Rassouli, Maryam
Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title_full Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title_fullStr Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title_full_unstemmed Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title_short Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care
title_sort gaining experience over time: the family caregivers' perception of patients with a tracheostomy in home care
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8132866/
https://www.ncbi.nlm.nih.gov/pubmed/34036061
http://dx.doi.org/10.4103/ijnmr.IJNMR_173_20
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