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ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study

OBJECTIVES: To investigate patients’ experience of ICU diaries 6 months after ICU discharge among survivors. This study was designed to add insight into a large randomized study, which found no benefit of the ICU diary to post-traumatic stress disorder among critically ill patients having received m...

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Autores principales: Flahault, Cécile, Trosdorf, Mathilde, Sonrier, Marie, Vioulac, Christel, Fasse, Léonor, Timsit, Jean-François, Bailly, Sébastien, Garrouste-Orgeas, Maité
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8133114/
https://www.ncbi.nlm.nih.gov/pubmed/34036266
http://dx.doi.org/10.1097/CCE.0000000000000384
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author Flahault, Cécile
Trosdorf, Mathilde
Sonrier, Marie
Vioulac, Christel
Fasse, Léonor
Timsit, Jean-François
Bailly, Sébastien
Garrouste-Orgeas, Maité
author_facet Flahault, Cécile
Trosdorf, Mathilde
Sonrier, Marie
Vioulac, Christel
Fasse, Léonor
Timsit, Jean-François
Bailly, Sébastien
Garrouste-Orgeas, Maité
author_sort Flahault, Cécile
collection PubMed
description OBJECTIVES: To investigate patients’ experience of ICU diaries 6 months after ICU discharge among survivors. This study was designed to add insight into a large randomized study, which found no benefit of the ICU diary to post-traumatic stress disorder among critically ill patients having received mechanical ventilation. DESIGN: A preplanned qualitative substudy of patients receiving an ICU diary written by ICU caregivers and families. Six months after ICU discharge, survivors were contacted by a psychologist for a telephone interview using a semi-directive guide. SETTING: Thirty-five French ICUs. PATIENTS: All ICU survivors having received an ICU diary. INTERVENTION: An ICU diary written by both ICU staff and families. MEASUREMENTS AND MAIN RESULTS: Among the 332 patients randomized in the intervention group (having had an ICU diary filled by both ICU staff and families), 191 (57.7%) were alive at 6 months and 101 of 191 (52.9%) participated in a telephone interview. They were (median [interquartile range]) 64 years old (53–70 yr old); 65 (64.4%) were men, and 79 (78.2%) were medical patients. Duration of ICU stay was 13 days (8–21 d). Three themes were derived from the thematic analysis: 1) reading the diary: between emotion and pain, 2) how the diary helped, and 3) the bittersweet representation of the diary. For half of the patients, the diary is a good memory of difficult times (55/101, 54.5%), others seem to be more ambivalent about it (28/101, 27.8%), and 37 of 101, 36.6% see it as a painful representation of a time to be forgotten. CONCLUSIONS: When reading their ICU diaries, ICU survivors experienced mixed emotions, related to family messages, medical caregiving, and to the severity of their illness. Patients described diaries as a help or a hindrance to recovery, depending on their wish to remember the period or move on from it.
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spelling pubmed-81331142021-05-24 ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study Flahault, Cécile Trosdorf, Mathilde Sonrier, Marie Vioulac, Christel Fasse, Léonor Timsit, Jean-François Bailly, Sébastien Garrouste-Orgeas, Maité Crit Care Explor Original Clinical Report OBJECTIVES: To investigate patients’ experience of ICU diaries 6 months after ICU discharge among survivors. This study was designed to add insight into a large randomized study, which found no benefit of the ICU diary to post-traumatic stress disorder among critically ill patients having received mechanical ventilation. DESIGN: A preplanned qualitative substudy of patients receiving an ICU diary written by ICU caregivers and families. Six months after ICU discharge, survivors were contacted by a psychologist for a telephone interview using a semi-directive guide. SETTING: Thirty-five French ICUs. PATIENTS: All ICU survivors having received an ICU diary. INTERVENTION: An ICU diary written by both ICU staff and families. MEASUREMENTS AND MAIN RESULTS: Among the 332 patients randomized in the intervention group (having had an ICU diary filled by both ICU staff and families), 191 (57.7%) were alive at 6 months and 101 of 191 (52.9%) participated in a telephone interview. They were (median [interquartile range]) 64 years old (53–70 yr old); 65 (64.4%) were men, and 79 (78.2%) were medical patients. Duration of ICU stay was 13 days (8–21 d). Three themes were derived from the thematic analysis: 1) reading the diary: between emotion and pain, 2) how the diary helped, and 3) the bittersweet representation of the diary. For half of the patients, the diary is a good memory of difficult times (55/101, 54.5%), others seem to be more ambivalent about it (28/101, 27.8%), and 37 of 101, 36.6% see it as a painful representation of a time to be forgotten. CONCLUSIONS: When reading their ICU diaries, ICU survivors experienced mixed emotions, related to family messages, medical caregiving, and to the severity of their illness. Patients described diaries as a help or a hindrance to recovery, depending on their wish to remember the period or move on from it. Lippincott Williams & Wilkins 2021-05-14 /pmc/articles/PMC8133114/ /pubmed/34036266 http://dx.doi.org/10.1097/CCE.0000000000000384 Text en Copyright © 2021 The Authors. Published by Wolters Kluwer Health, Inc. on behalf of the Society of Critical Care Medicine. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND) (https://creativecommons.org/licenses/by-nc-nd/4.0/) , where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
spellingShingle Original Clinical Report
Flahault, Cécile
Trosdorf, Mathilde
Sonrier, Marie
Vioulac, Christel
Fasse, Léonor
Timsit, Jean-François
Bailly, Sébastien
Garrouste-Orgeas, Maité
ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title_full ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title_fullStr ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title_full_unstemmed ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title_short ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study
title_sort icu survivors experience of icu diaries: an ancillary qualitative analysis of the icu diary study
topic Original Clinical Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8133114/
https://www.ncbi.nlm.nih.gov/pubmed/34036266
http://dx.doi.org/10.1097/CCE.0000000000000384
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