Design of a Non-Interventional Study to Validate a Set of Patient- and Caregiver-Oriented Measurements to Assess Health Outcomes in Spinal Muscular Atrophy (SMA-TOOL Study)

INTRODUCTION: There is a need to optimize the current clinical outcome measures in spinal muscular atrophy (SMA) incorporating patients’ and caregivers’ perspectives. The aim of this study is to evaluate the psychometric properties (validity, reliability and sensitivity to change) of a set of existi...

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Detalles Bibliográficos
Autores principales: Madruga-Garrido, Marcos, Vázquez-Costa, Juan F., Medina-Cantillo, Julita, Brañas, María, Cattinari, María G., de Lemus, Mencía, Díaz-Abós, Paola, Sánchez-Menéndez, Victoria, Terrancle, Ángeles, Rebollo, Pablo, Maurino, Jorge
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2021
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8140031/
https://www.ncbi.nlm.nih.gov/pubmed/33420962
http://dx.doi.org/10.1007/s40120-020-00229-w

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