Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

BACKGROUND: Public trust is central to the collection of genomic and health data and the sustainability of genomic research. To merit trust, those involved in collecting and sharing data need to demonstrate they are trustworthy. However, it is unclear what measures are most likely to demonstrate thi...

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Detalles Bibliográficos
Autores principales: Milne, Richard, Morley, Katherine I., Almarri, Mohamed A., Anwer, Shamim, Atutornu, Jerome, Baranova, Elena E., Bevan, Paul, Cerezo, Maria, Cong, Yali, Costa, Alessia, Critchley, Christine, Fernow, Josepine, Goodhand, Peter, Hasan, Qurratulain, Hibino, Aiko, Houeland, Gry, Howard, Heidi C., Hussain, S. Zakir, Malmgren, Charlotta Ingvoldstad, Izhevskaya, Vera L., Jędrzejak, Aleksandra, Jinhong, Cao, Kimura, Megumi, Kleiderman, Erika, Leach, Brandi, Liu, Keying, Mascalzoni, Deborah, Mendes, Álvaro, Minari, Jusaku, Nicol, Dianne, Niemiec, Emilia, Patch, Christine, Pollard, Jack, Prainsack, Barbara, Rivière, Marie, Robarts, Lauren, Roberts, Jonathan, Romano, Virginia, Sheerah, Haytham A., Smith, James, Soulier, Alexandra, Steed, Claire, Stefànsdóttir, Vigdis, Tandre, Cornelia, Thorogood, Adrian, Voigt, Torsten H., Wang, Nan, West, Anne V., Yoshizawa, Go, Middleton, Anna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8147072/
https://www.ncbi.nlm.nih.gov/pubmed/34034801
http://dx.doi.org/10.1186/s13073-021-00903-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8147072/
https://www.ncbi.nlm.nih.gov/pubmed/34034801
http://dx.doi.org/10.1186/s13073-021-00903-0

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