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Person‐centered assessment of people living with dementia: Review of existing measures

INTRODUCTION: Person‐centered care and assessment calls for measurement tools that help researchers and providers understand people with dementia, their social relationships, and their experience of the care environment. This paper reviewed available measures and evaluated their psychometric propert...

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Autores principales: Mast, Benjamin T., Molony, Sheila L., Nicholson, Nicholas, Kate Keefe, Caroline, DiGasbarro, Diana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8149970/
https://www.ncbi.nlm.nih.gov/pubmed/34095438
http://dx.doi.org/10.1002/trc2.12138
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author Mast, Benjamin T.
Molony, Sheila L.
Nicholson, Nicholas
Kate Keefe, Caroline
DiGasbarro, Diana
author_facet Mast, Benjamin T.
Molony, Sheila L.
Nicholson, Nicholas
Kate Keefe, Caroline
DiGasbarro, Diana
author_sort Mast, Benjamin T.
collection PubMed
description INTRODUCTION: Person‐centered care and assessment calls for measurement tools that help researchers and providers understand people with dementia, their social relationships, and their experience of the care environment. This paper reviewed available measures and evaluated their psychometric properties. METHODS: Literature searches of major databases (PsycInfo, PubMed, EBSCO, CINAHL) for papers examining person‐centered constructs in samples of people living with dementia or mild cognitive impairment. Reliability and validity coefficients were reviewed and reported. RESULTS: We identified 26 unique measures that had been tested in samples of people living with dementia. Twelve measures of hope, well‐being, engagement, social relationships, meaning, resilience, stigma, spiritual beliefs and practices, values and preferences, and positive psychology constructs had strong psychometric properties in samples with dementia. DISCUSSION: A variety of reliability and valid measures were identified for use in person‐centered care and research with people living with dementia. Additional measure development is needed for key person‐centered concepts including dignity and strengths.
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spelling pubmed-81499702021-06-03 Person‐centered assessment of people living with dementia: Review of existing measures Mast, Benjamin T. Molony, Sheila L. Nicholson, Nicholas Kate Keefe, Caroline DiGasbarro, Diana Alzheimers Dement (N Y) Special Topic Section INTRODUCTION: Person‐centered care and assessment calls for measurement tools that help researchers and providers understand people with dementia, their social relationships, and their experience of the care environment. This paper reviewed available measures and evaluated their psychometric properties. METHODS: Literature searches of major databases (PsycInfo, PubMed, EBSCO, CINAHL) for papers examining person‐centered constructs in samples of people living with dementia or mild cognitive impairment. Reliability and validity coefficients were reviewed and reported. RESULTS: We identified 26 unique measures that had been tested in samples of people living with dementia. Twelve measures of hope, well‐being, engagement, social relationships, meaning, resilience, stigma, spiritual beliefs and practices, values and preferences, and positive psychology constructs had strong psychometric properties in samples with dementia. DISCUSSION: A variety of reliability and valid measures were identified for use in person‐centered care and research with people living with dementia. Additional measure development is needed for key person‐centered concepts including dignity and strengths. John Wiley and Sons Inc. 2021-05-25 /pmc/articles/PMC8149970/ /pubmed/34095438 http://dx.doi.org/10.1002/trc2.12138 Text en © 2021 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals, Inc. on behalf of Alzheimer's Association. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Special Topic Section
Mast, Benjamin T.
Molony, Sheila L.
Nicholson, Nicholas
Kate Keefe, Caroline
DiGasbarro, Diana
Person‐centered assessment of people living with dementia: Review of existing measures
title Person‐centered assessment of people living with dementia: Review of existing measures
title_full Person‐centered assessment of people living with dementia: Review of existing measures
title_fullStr Person‐centered assessment of people living with dementia: Review of existing measures
title_full_unstemmed Person‐centered assessment of people living with dementia: Review of existing measures
title_short Person‐centered assessment of people living with dementia: Review of existing measures
title_sort person‐centered assessment of people living with dementia: review of existing measures
topic Special Topic Section
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8149970/
https://www.ncbi.nlm.nih.gov/pubmed/34095438
http://dx.doi.org/10.1002/trc2.12138
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