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Supported Decision Making in South America: Analysis of Three Countries’ Experiences

Background. Following the adoption of the UN Convention on the Rights of Persons with Disabilities, there has been increased interest in supported decision making (SDM) as a strategy to realize the right to legal capacity of persons with intellectual and psychosocial disabilities. Support for decisi...

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Autores principales: Vásquez Encalada, Alberto, Bialik, Kimber, Stober, Kaitlin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8153590/
https://www.ncbi.nlm.nih.gov/pubmed/34068394
http://dx.doi.org/10.3390/ijerph18105204
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author Vásquez Encalada, Alberto
Bialik, Kimber
Stober, Kaitlin
author_facet Vásquez Encalada, Alberto
Bialik, Kimber
Stober, Kaitlin
author_sort Vásquez Encalada, Alberto
collection PubMed
description Background. Following the adoption of the UN Convention on the Rights of Persons with Disabilities, there has been increased interest in supported decision making (SDM) as a strategy to realize the right to legal capacity of persons with intellectual and psychosocial disabilities. Support for decision making has been delivered formally through SDM services as well as informally through interpersonal networks. Various SDM programs have made efforts to systematize informal support, showcasing a variety of SDM delivery models that could benefit SDM implementation in low- and middle-income countries. Methods. This article examines and discusses three SDM projects in South America (Colombia, Peru, and Argentina) that have been directly implemented by civil society organizations, including organizations of persons with disabilities and their families. Analyzed program components include person-centered planning, the nature of support relationships, the presence of supporter training, community involvement, and the utilization of quality assurance measures such as monitoring and program evaluation. Conclusions. The results and learning from these initiatives constitute a valuable source of information for legislators and policymakers for the future development of supported decision-making programs, which are an essential form of support and a mechanism for fulfilling the right to legal capacity in low resource settings.
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spelling pubmed-81535902021-05-27 Supported Decision Making in South America: Analysis of Three Countries’ Experiences Vásquez Encalada, Alberto Bialik, Kimber Stober, Kaitlin Int J Environ Res Public Health Article Background. Following the adoption of the UN Convention on the Rights of Persons with Disabilities, there has been increased interest in supported decision making (SDM) as a strategy to realize the right to legal capacity of persons with intellectual and psychosocial disabilities. Support for decision making has been delivered formally through SDM services as well as informally through interpersonal networks. Various SDM programs have made efforts to systematize informal support, showcasing a variety of SDM delivery models that could benefit SDM implementation in low- and middle-income countries. Methods. This article examines and discusses three SDM projects in South America (Colombia, Peru, and Argentina) that have been directly implemented by civil society organizations, including organizations of persons with disabilities and their families. Analyzed program components include person-centered planning, the nature of support relationships, the presence of supporter training, community involvement, and the utilization of quality assurance measures such as monitoring and program evaluation. Conclusions. The results and learning from these initiatives constitute a valuable source of information for legislators and policymakers for the future development of supported decision-making programs, which are an essential form of support and a mechanism for fulfilling the right to legal capacity in low resource settings. MDPI 2021-05-13 /pmc/articles/PMC8153590/ /pubmed/34068394 http://dx.doi.org/10.3390/ijerph18105204 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Vásquez Encalada, Alberto
Bialik, Kimber
Stober, Kaitlin
Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title_full Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title_fullStr Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title_full_unstemmed Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title_short Supported Decision Making in South America: Analysis of Three Countries’ Experiences
title_sort supported decision making in south america: analysis of three countries’ experiences
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8153590/
https://www.ncbi.nlm.nih.gov/pubmed/34068394
http://dx.doi.org/10.3390/ijerph18105204
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