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RARE-06. CLINICAL BURDEN AMONG PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 (NF1) AND PLEXIFORM NEUROFIBROMA (PN) IN THE UNITED STATES (US)
BACKGROUND: Plexiform neurofibromas (PNs) occur in 30–50% of pediatric patients with neurofibromatosis type 1 (NF1), often resulting in debilitating pain and dysfunction. Real-world evidence describing the clinical disease burden among these patients is limited. This study aimed to characterize this...
Autores principales: | Yang, Xiaoqin, Yoo, Hyun Kyoo, Amin, Suvina, Cheng, Wendy, Sipsma, Heather, Sundaresan, Sanjana, Zhang, Lujia, Duh, Mei Sheng |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8168259/ http://dx.doi.org/10.1093/neuonc/noab090.167 |
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