Association between subjective well‐being and perception of medical care system among patients with Marfan syndrome: A cross‐sectional study

BACKGROUND: This study investigated the association between subjective well‐being and perception for collaboration among clinical departments of adult Marfan syndrome (MFS) patients. METHODS: We performed a self‐administered questionnaire survey to ask about current medical treatment and support systems and subjective well‐being for 114 patients with MFS aged 18–64 years. It was hypothesized that patients’ perception of collaboration between clinical departments would raise their subjective well‐being. Mean value differences were predicted by a multiple regression analysis model, with supportive medical staff, age, sex, aorta dissection, family history, marriage status, and educational background adjusted. RESULTS: Patients’ perception of collaboration between clinical departments and being married raised SWLS scores (mean difference for patients’ perception of collaboration versus not = 3.41, 95% CI = 0.28, 6.53, p = .03; for married versus single = 5.22, 95% CI = 1.75, 8.69, p = .003). CONCLUSION: Our results have suggested that it is necessary to maintain and enhance the medical treatment system with the patients for improving the subjective well‐being of MFS patients. In addition, the result indicated the need for intervention to the patients themselves and also their family so that it allows patients to receive physical and emotional support from people close to them.