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Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program
BACKGROUND: There is great need for development of feasible rehabilitation for older people with dementia. Increased understanding of this population’s experiences of rehabilitation participation is therefore important. The aim of this study was to explore the experiences of community-dwelling older...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8173830/ https://www.ncbi.nlm.nih.gov/pubmed/34078266 http://dx.doi.org/10.1186/s12877-021-02282-y |
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author | Sondell, Anna Lampinen, Josefine Conradsson, Mia Littbrand, Håkan Englund, Undis Nilsson, Ingeborg Lindelöf, Nina |
author_facet | Sondell, Anna Lampinen, Josefine Conradsson, Mia Littbrand, Håkan Englund, Undis Nilsson, Ingeborg Lindelöf, Nina |
author_sort | Sondell, Anna |
collection | PubMed |
description | BACKGROUND: There is great need for development of feasible rehabilitation for older people with dementia. Increased understanding of this population’s experiences of rehabilitation participation is therefore important. The aim of this study was to explore the experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program. METHODS: Sixteen older people with dementia were interviewed about their experiences of participation in a person-centred multidimensional interdisciplinary rehabilitation program. The program comprised assessments by a comprehensive team of rehabilitation professionals followed by a rehabilitation period of 16 weeks, including interventions based on individualized rehabilitation goals conducted with the support of the rehabilitation team. The rehabilitation was performed in the participants’ homes, in the community and at an outpatient clinic, including exercise with social interaction in small groups offered twice a week to all participants. The interviews were conducted at the end of the rehabilitation period and analysed with qualitative content analysis. RESULTS: The analysis resulted in one overarching theme: Empowered through participation and togetherness and four sub-themes: Being strengthened through challenges; Gaining insights, motives, and raising concerns about the future; Being seen makes participation worthwhile; and Feelings of togetherness in prosperity and adversity. The participants increased their self-esteem by daring and coping in the rehabilitation. The insights about themselves and their condition motivated them to continue with their prioritized activities, but also raised concerns about how the future would play out. Collaboration in the group and being seen and acknowledged by staff strengthened their own motivation and self-efficacy. CONCLUSION: According to community-dwelling older people with dementia, a person-centred multidimensional interdisciplinary rehabilitation program was experienced as viable and beneficial. The participants seemed empowered through the rehabilitation and expressed mostly positive experiences and perceived improvements. Providers of interdisciplinary rehabilitation programs for this group should consider aspects raised by the participants e.g. the positive experience of being challenged in both exercise and daily activities; the importance of being seen and feeling secure; the benefits and challenges of collaboration with others in the same situation; and the generation of new perspectives of current and future situation. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02282-y. |
format | Online Article Text |
id | pubmed-8173830 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-81738302021-06-03 Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program Sondell, Anna Lampinen, Josefine Conradsson, Mia Littbrand, Håkan Englund, Undis Nilsson, Ingeborg Lindelöf, Nina BMC Geriatr Research Article BACKGROUND: There is great need for development of feasible rehabilitation for older people with dementia. Increased understanding of this population’s experiences of rehabilitation participation is therefore important. The aim of this study was to explore the experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program. METHODS: Sixteen older people with dementia were interviewed about their experiences of participation in a person-centred multidimensional interdisciplinary rehabilitation program. The program comprised assessments by a comprehensive team of rehabilitation professionals followed by a rehabilitation period of 16 weeks, including interventions based on individualized rehabilitation goals conducted with the support of the rehabilitation team. The rehabilitation was performed in the participants’ homes, in the community and at an outpatient clinic, including exercise with social interaction in small groups offered twice a week to all participants. The interviews were conducted at the end of the rehabilitation period and analysed with qualitative content analysis. RESULTS: The analysis resulted in one overarching theme: Empowered through participation and togetherness and four sub-themes: Being strengthened through challenges; Gaining insights, motives, and raising concerns about the future; Being seen makes participation worthwhile; and Feelings of togetherness in prosperity and adversity. The participants increased their self-esteem by daring and coping in the rehabilitation. The insights about themselves and their condition motivated them to continue with their prioritized activities, but also raised concerns about how the future would play out. Collaboration in the group and being seen and acknowledged by staff strengthened their own motivation and self-efficacy. CONCLUSION: According to community-dwelling older people with dementia, a person-centred multidimensional interdisciplinary rehabilitation program was experienced as viable and beneficial. The participants seemed empowered through the rehabilitation and expressed mostly positive experiences and perceived improvements. Providers of interdisciplinary rehabilitation programs for this group should consider aspects raised by the participants e.g. the positive experience of being challenged in both exercise and daily activities; the importance of being seen and feeling secure; the benefits and challenges of collaboration with others in the same situation; and the generation of new perspectives of current and future situation. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02282-y. BioMed Central 2021-06-02 /pmc/articles/PMC8173830/ /pubmed/34078266 http://dx.doi.org/10.1186/s12877-021-02282-y Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Sondell, Anna Lampinen, Josefine Conradsson, Mia Littbrand, Håkan Englund, Undis Nilsson, Ingeborg Lindelöf, Nina Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title | Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title_full | Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title_fullStr | Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title_full_unstemmed | Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title_short | Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
title_sort | experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8173830/ https://www.ncbi.nlm.nih.gov/pubmed/34078266 http://dx.doi.org/10.1186/s12877-021-02282-y |
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