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Ethical Issues in Patient Data Ownership
Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises et...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8178732/ https://www.ncbi.nlm.nih.gov/pubmed/34018968 http://dx.doi.org/10.2196/22269 |
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author | Chiruvella, Varsha Guddati, Achuta Kumar |
author_facet | Chiruvella, Varsha Guddati, Achuta Kumar |
author_sort | Chiruvella, Varsha |
collection | PubMed |
description | Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities. |
format | Online Article Text |
id | pubmed-8178732 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-81787322021-06-22 Ethical Issues in Patient Data Ownership Chiruvella, Varsha Guddati, Achuta Kumar Interact J Med Res Viewpoint Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities. JMIR Publications 2021-05-21 /pmc/articles/PMC8178732/ /pubmed/34018968 http://dx.doi.org/10.2196/22269 Text en ©Varsha Chiruvella, Achuta Kumar Guddati. Originally published in the Interactive Journal of Medical Research (https://www.i-jmr.org/), 21.05.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Interactive Journal of Medical Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.i-jmr.org/, as well as this copyright and license information must be included. |
spellingShingle | Viewpoint Chiruvella, Varsha Guddati, Achuta Kumar Ethical Issues in Patient Data Ownership |
title | Ethical Issues in Patient Data Ownership |
title_full | Ethical Issues in Patient Data Ownership |
title_fullStr | Ethical Issues in Patient Data Ownership |
title_full_unstemmed | Ethical Issues in Patient Data Ownership |
title_short | Ethical Issues in Patient Data Ownership |
title_sort | ethical issues in patient data ownership |
topic | Viewpoint |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8178732/ https://www.ncbi.nlm.nih.gov/pubmed/34018968 http://dx.doi.org/10.2196/22269 |
work_keys_str_mv | AT chiruvellavarsha ethicalissuesinpatientdataownership AT guddatiachutakumar ethicalissuesinpatientdataownership |