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Transition of patients with interstitial lung disease from paediatric to adult care
The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of th...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
European Respiratory Society
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8181827/ https://www.ncbi.nlm.nih.gov/pubmed/34109246 http://dx.doi.org/10.1183/23120541.00964-2020 |
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author | Koucký, Václav Pohunek, Petr Vašáková, Martina Bush, Andrew |
author_facet | Koucký, Václav Pohunek, Petr Vašáková, Martina Bush, Andrew |
author_sort | Koucký, Václav |
collection | PubMed |
description | The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases. |
format | Online Article Text |
id | pubmed-8181827 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | European Respiratory Society |
record_format | MEDLINE/PubMed |
spelling | pubmed-81818272021-06-08 Transition of patients with interstitial lung disease from paediatric to adult care Koucký, Václav Pohunek, Petr Vašáková, Martina Bush, Andrew ERJ Open Res Original Articles The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases. European Respiratory Society 2021-06-07 /pmc/articles/PMC8181827/ /pubmed/34109246 http://dx.doi.org/10.1183/23120541.00964-2020 Text en Copyright ©The authors 2021 https://creativecommons.org/licenses/by-nc/4.0/This version is distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0. For commercial reproduction rights and permissions contact permissions@ersnet.org (mailto:permissions@ersnet.org) |
spellingShingle | Original Articles Koucký, Václav Pohunek, Petr Vašáková, Martina Bush, Andrew Transition of patients with interstitial lung disease from paediatric to adult care |
title | Transition of patients with interstitial lung disease from paediatric to adult care |
title_full | Transition of patients with interstitial lung disease from paediatric to adult care |
title_fullStr | Transition of patients with interstitial lung disease from paediatric to adult care |
title_full_unstemmed | Transition of patients with interstitial lung disease from paediatric to adult care |
title_short | Transition of patients with interstitial lung disease from paediatric to adult care |
title_sort | transition of patients with interstitial lung disease from paediatric to adult care |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8181827/ https://www.ncbi.nlm.nih.gov/pubmed/34109246 http://dx.doi.org/10.1183/23120541.00964-2020 |
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