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Transition of patients with interstitial lung disease from paediatric to adult care

The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of th...

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Autores principales: Koucký, Václav, Pohunek, Petr, Vašáková, Martina, Bush, Andrew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8181827/
https://www.ncbi.nlm.nih.gov/pubmed/34109246
http://dx.doi.org/10.1183/23120541.00964-2020
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author Koucký, Václav
Pohunek, Petr
Vašáková, Martina
Bush, Andrew
author_facet Koucký, Václav
Pohunek, Petr
Vašáková, Martina
Bush, Andrew
author_sort Koucký, Václav
collection PubMed
description The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases.
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spelling pubmed-81818272021-06-08 Transition of patients with interstitial lung disease from paediatric to adult care Koucký, Václav Pohunek, Petr Vašáková, Martina Bush, Andrew ERJ Open Res Original Articles The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases. European Respiratory Society 2021-06-07 /pmc/articles/PMC8181827/ /pubmed/34109246 http://dx.doi.org/10.1183/23120541.00964-2020 Text en Copyright ©The authors 2021 https://creativecommons.org/licenses/by-nc/4.0/This version is distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0. For commercial reproduction rights and permissions contact permissions@ersnet.org (mailto:permissions@ersnet.org)
spellingShingle Original Articles
Koucký, Václav
Pohunek, Petr
Vašáková, Martina
Bush, Andrew
Transition of patients with interstitial lung disease from paediatric to adult care
title Transition of patients with interstitial lung disease from paediatric to adult care
title_full Transition of patients with interstitial lung disease from paediatric to adult care
title_fullStr Transition of patients with interstitial lung disease from paediatric to adult care
title_full_unstemmed Transition of patients with interstitial lung disease from paediatric to adult care
title_short Transition of patients with interstitial lung disease from paediatric to adult care
title_sort transition of patients with interstitial lung disease from paediatric to adult care
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8181827/
https://www.ncbi.nlm.nih.gov/pubmed/34109246
http://dx.doi.org/10.1183/23120541.00964-2020
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