Cargando…

Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases

Caring for patients suffering from a rare disease (RD) requires the special and combined efforts of different healthcare professionals, including nurses, physiotherapists and physicians. Nevertheless, Poland still lacks a national plan for RDs and the undergraduate and postgraduate education of futu...

Descripción completa

Detalles Bibliográficos
Autores principales: Domaradzki, Jan, Walkowiak, Dariusz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8194301/
https://www.ncbi.nlm.nih.gov/pubmed/34122502
http://dx.doi.org/10.3389/fgene.2021.639610
_version_ 1783706391811194880
author Domaradzki, Jan
Walkowiak, Dariusz
author_facet Domaradzki, Jan
Walkowiak, Dariusz
author_sort Domaradzki, Jan
collection PubMed
description Caring for patients suffering from a rare disease (RD) requires the special and combined efforts of different healthcare professionals, including nurses, physiotherapists and physicians. Nevertheless, Poland still lacks a national plan for RDs and the undergraduate and postgraduate education of future healthcare professionals on RDs is also inadequate. Thus, the aim of this study was to assess the awareness of RDs among nursing, physiotherapy and medical students in Poland. It shows that although 98% of respondents had heard of the term “rare disease,” most students had problems in defining the most common causes of RDs and their prevalence. Students also lacked basic knowledge about the healthcare system for RD patients in the country. While over 95% of future nurses, physiotherapists and physicians assessed their knowledge about RDs as insufficient or very poor, almost 92% of medical students, and 84% of physiotherapy and nursing students, did not feel prepared for caring for RD patients. Furthermore, although the vast majority of respondents declared eagerness to broaden their knowledge on RDs, only 45% of medical students, 76% of nursing students and 88% of physiotherapy students believed that RDs should be included into the medical curricula. Simultaneously, for most students the Internet was the prime source of information on RDs. It is concluded that as caring for RD patients requires a multidisciplinary approach, by identifying the gap in the education of future nurses, physiotherapists and physicians this study shows that there is an urgent need of better education about RDs among future healthcare professionals.
format Online
Article
Text
id pubmed-8194301
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-81943012021-06-12 Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases Domaradzki, Jan Walkowiak, Dariusz Front Genet Genetics Caring for patients suffering from a rare disease (RD) requires the special and combined efforts of different healthcare professionals, including nurses, physiotherapists and physicians. Nevertheless, Poland still lacks a national plan for RDs and the undergraduate and postgraduate education of future healthcare professionals on RDs is also inadequate. Thus, the aim of this study was to assess the awareness of RDs among nursing, physiotherapy and medical students in Poland. It shows that although 98% of respondents had heard of the term “rare disease,” most students had problems in defining the most common causes of RDs and their prevalence. Students also lacked basic knowledge about the healthcare system for RD patients in the country. While over 95% of future nurses, physiotherapists and physicians assessed their knowledge about RDs as insufficient or very poor, almost 92% of medical students, and 84% of physiotherapy and nursing students, did not feel prepared for caring for RD patients. Furthermore, although the vast majority of respondents declared eagerness to broaden their knowledge on RDs, only 45% of medical students, 76% of nursing students and 88% of physiotherapy students believed that RDs should be included into the medical curricula. Simultaneously, for most students the Internet was the prime source of information on RDs. It is concluded that as caring for RD patients requires a multidisciplinary approach, by identifying the gap in the education of future nurses, physiotherapists and physicians this study shows that there is an urgent need of better education about RDs among future healthcare professionals. Frontiers Media S.A. 2021-05-28 /pmc/articles/PMC8194301/ /pubmed/34122502 http://dx.doi.org/10.3389/fgene.2021.639610 Text en Copyright © 2021 Domaradzki and Walkowiak. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Domaradzki, Jan
Walkowiak, Dariusz
Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title_full Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title_fullStr Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title_full_unstemmed Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title_short Knowledge and Attitudes of Future Healthcare Professionals Toward Rare Diseases
title_sort knowledge and attitudes of future healthcare professionals toward rare diseases
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8194301/
https://www.ncbi.nlm.nih.gov/pubmed/34122502
http://dx.doi.org/10.3389/fgene.2021.639610
work_keys_str_mv AT domaradzkijan knowledgeandattitudesoffuturehealthcareprofessionalstowardrarediseases
AT walkowiakdariusz knowledgeandattitudesoffuturehealthcareprofessionalstowardrarediseases