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Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting

Home-based models represent one of the solutions to respond to the poor accessibility of pulmonary rehabilitation (PR) services in patients with chronic respiratory disease (CRD). The main goal of this protocol is to present the implementation of the first nationwide home-based PR program—reabilitAR...

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Autores principales: Bernard, Sarah, Vilarinho, Rui, Pinto, Inês, Cantante, Rosa, Coxo, Ricardo, Fonseca, Rosa, Mayoralas-Alises, Sagrario, Diaz-Lobato, Salvador, Carvalho, João, Esteves, Cátia, Caneiras, Cátia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8201276/
https://www.ncbi.nlm.nih.gov/pubmed/34204141
http://dx.doi.org/10.3390/ijerph18116132
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author Bernard, Sarah
Vilarinho, Rui
Pinto, Inês
Cantante, Rosa
Coxo, Ricardo
Fonseca, Rosa
Mayoralas-Alises, Sagrario
Diaz-Lobato, Salvador
Carvalho, João
Esteves, Cátia
Caneiras, Cátia
author_facet Bernard, Sarah
Vilarinho, Rui
Pinto, Inês
Cantante, Rosa
Coxo, Ricardo
Fonseca, Rosa
Mayoralas-Alises, Sagrario
Diaz-Lobato, Salvador
Carvalho, João
Esteves, Cátia
Caneiras, Cátia
author_sort Bernard, Sarah
collection PubMed
description Home-based models represent one of the solutions to respond to the poor accessibility of pulmonary rehabilitation (PR) services in patients with chronic respiratory disease (CRD). The main goal of this protocol is to present the implementation of the first nationwide home-based PR program—reabilitAR—in Portugal and the strategies to assess its benefits in patients with CRD. The program consists of 2 phases: a 12-week intensive phase and a 40-week maintenance phase (total: 52 weeks, 1 year). The intervention in both phases is composed of presential home visits and phone-call follow ups, including exercise training and the self-management educational program Living Well with COPD. Dyspnea, impact of the disease, emotional status, and level of dyspnea during activities of daily living are used as patient-reported outcomes measures. A one-minute sit-to-stand test is used as a functional outcome, and the number of steps as a measure of physical activity. To ensure safety, fall risk and the cognitive function are assessed. Data are collected at baseline, at 12 weeks, at 26 weeks and at 52 weeks. This is the first nationwide protocol on enhancing access to PR, providing appropriate responses to CRD patients’ needs through a structured and personalized home-based program in Portugal.
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spelling pubmed-82012762021-06-15 Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting Bernard, Sarah Vilarinho, Rui Pinto, Inês Cantante, Rosa Coxo, Ricardo Fonseca, Rosa Mayoralas-Alises, Sagrario Diaz-Lobato, Salvador Carvalho, João Esteves, Cátia Caneiras, Cátia Int J Environ Res Public Health Protocol Home-based models represent one of the solutions to respond to the poor accessibility of pulmonary rehabilitation (PR) services in patients with chronic respiratory disease (CRD). The main goal of this protocol is to present the implementation of the first nationwide home-based PR program—reabilitAR—in Portugal and the strategies to assess its benefits in patients with CRD. The program consists of 2 phases: a 12-week intensive phase and a 40-week maintenance phase (total: 52 weeks, 1 year). The intervention in both phases is composed of presential home visits and phone-call follow ups, including exercise training and the self-management educational program Living Well with COPD. Dyspnea, impact of the disease, emotional status, and level of dyspnea during activities of daily living are used as patient-reported outcomes measures. A one-minute sit-to-stand test is used as a functional outcome, and the number of steps as a measure of physical activity. To ensure safety, fall risk and the cognitive function are assessed. Data are collected at baseline, at 12 weeks, at 26 weeks and at 52 weeks. This is the first nationwide protocol on enhancing access to PR, providing appropriate responses to CRD patients’ needs through a structured and personalized home-based program in Portugal. MDPI 2021-06-06 /pmc/articles/PMC8201276/ /pubmed/34204141 http://dx.doi.org/10.3390/ijerph18116132 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Protocol
Bernard, Sarah
Vilarinho, Rui
Pinto, Inês
Cantante, Rosa
Coxo, Ricardo
Fonseca, Rosa
Mayoralas-Alises, Sagrario
Diaz-Lobato, Salvador
Carvalho, João
Esteves, Cátia
Caneiras, Cátia
Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title_full Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title_fullStr Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title_full_unstemmed Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title_short Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program—reabilitAR: Protocol for Real-World Setting
title_sort enhance access to pulmonary rehabilitation with a structured and personalized home-based program—reabilitar: protocol for real-world setting
topic Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8201276/
https://www.ncbi.nlm.nih.gov/pubmed/34204141
http://dx.doi.org/10.3390/ijerph18116132
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