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Survival of patients with rare diseases: a population-based study in Tuscany (Italy)
BACKGROUND: Rare diseases (RDs) encompass a heterogeneous group of life-threatening or chronically debilitating conditions that individually affect a small number of subjects but overall represent a major public health issue globally. There are still limited data on RD burden due to the paucity of l...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8201697/ https://www.ncbi.nlm.nih.gov/pubmed/34127030 http://dx.doi.org/10.1186/s13023-021-01907-0 |