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“There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program

PURPOSE: The Ovarian Cancer Research Alliance’s Woman to Woman (W2W) program is a peer mentorship program for women with gynecological cancer that was founded in 2004 and has expanded to 43 sites nationwide. An initial program survey was conducted in 2013, but no qualitative studies have investigate...

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Autores principales: Moran, Hannah Kang, Brooks, Joanna Veazey, Spoozak, Lori
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212279/
https://www.ncbi.nlm.nih.gov/pubmed/34143325
http://dx.doi.org/10.1007/s00520-021-06348-w
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author Moran, Hannah Kang
Brooks, Joanna Veazey
Spoozak, Lori
author_facet Moran, Hannah Kang
Brooks, Joanna Veazey
Spoozak, Lori
author_sort Moran, Hannah Kang
collection PubMed
description PURPOSE: The Ovarian Cancer Research Alliance’s Woman to Woman (W2W) program is a peer mentorship program for women with gynecological cancer that was founded in 2004 and has expanded to 43 sites nationwide. An initial program survey was conducted in 2013, but no qualitative studies have investigated patient experiences with peer support programs for gynecologic cancer in the USA. This study examines the match experience at one program site. The aim of this qualitative study was to capture mentor and mentee experiences giving and receiving peer support, including how relationships were initiated and developed. METHODS: Hour-long, semi-structured interviews were conducted with both mentors and mentees. Interviews focused on the dynamics of the mentor–mentee relationship. Interviews were recorded, transcribed verbatim, and open-coded. A qualitative descriptive approach was used to organize findings into themes. RESULTS: Sixteen participants (N = 16) were interviewed (seven mentors and nine mentees.) Three broad themes emerged: (i) pathways to the program; (ii) how connection occurred; and (iii) themes of compatibility. While program participants universally valued their match experience, frequency and mode of communication, as well as expectations of the match relationship were widely divergent among the program participants. CONCLUSION: The W2W peer mentorship program is a valuable resource for patients with gynecologic cancer. Refining the wants and needs of mentees including mode of communication, frequency of communication, type of support desired, identifying topics of mutual interest, and introducing the concept of recurrence may improve the connectivity experienced by mentor–mentee dyads.
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spelling pubmed-82122792021-06-21 “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program Moran, Hannah Kang Brooks, Joanna Veazey Spoozak, Lori Support Care Cancer Original Article PURPOSE: The Ovarian Cancer Research Alliance’s Woman to Woman (W2W) program is a peer mentorship program for women with gynecological cancer that was founded in 2004 and has expanded to 43 sites nationwide. An initial program survey was conducted in 2013, but no qualitative studies have investigated patient experiences with peer support programs for gynecologic cancer in the USA. This study examines the match experience at one program site. The aim of this qualitative study was to capture mentor and mentee experiences giving and receiving peer support, including how relationships were initiated and developed. METHODS: Hour-long, semi-structured interviews were conducted with both mentors and mentees. Interviews focused on the dynamics of the mentor–mentee relationship. Interviews were recorded, transcribed verbatim, and open-coded. A qualitative descriptive approach was used to organize findings into themes. RESULTS: Sixteen participants (N = 16) were interviewed (seven mentors and nine mentees.) Three broad themes emerged: (i) pathways to the program; (ii) how connection occurred; and (iii) themes of compatibility. While program participants universally valued their match experience, frequency and mode of communication, as well as expectations of the match relationship were widely divergent among the program participants. CONCLUSION: The W2W peer mentorship program is a valuable resource for patients with gynecologic cancer. Refining the wants and needs of mentees including mode of communication, frequency of communication, type of support desired, identifying topics of mutual interest, and introducing the concept of recurrence may improve the connectivity experienced by mentor–mentee dyads. Springer Berlin Heidelberg 2021-06-18 2021 /pmc/articles/PMC8212279/ /pubmed/34143325 http://dx.doi.org/10.1007/s00520-021-06348-w Text en © The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature 2021 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Article
Moran, Hannah Kang
Brooks, Joanna Veazey
Spoozak, Lori
“There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title_full “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title_fullStr “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title_full_unstemmed “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title_short “There’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
title_sort “there’s somebody like me”: perspectives of a peer-to-peer gynecologic cancer mentorship program
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212279/
https://www.ncbi.nlm.nih.gov/pubmed/34143325
http://dx.doi.org/10.1007/s00520-021-06348-w
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