Creating a pediatric advisory board for engaging youth in pediatric health research: A case study

Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth a...

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Detalles Bibliográficos
Autores principales: Orellana, Minerva, Valdez-Soto, Miguel, Brockman, Tabetha A., Balls-Berry, Joyce E., Zavala Rocha, Maria Guadalupe, Allyse, Megan A., DSouza, Karen N., Riggan, Kirsten A., Juhn, Young, Patten, Christi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2021
Materias:
Brief Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223170/
https://www.ncbi.nlm.nih.gov/pubmed/34221455
http://dx.doi.org/10.1017/cts.2021.399
Descripción
Sumario:Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11–17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research.

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