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Creating a pediatric advisory board for engaging youth in pediatric health research: A case study

Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth a...

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Autores principales: Orellana, Minerva, Valdez-Soto, Miguel, Brockman, Tabetha A., Balls-Berry, Joyce E., Zavala Rocha, Maria Guadalupe, Allyse, Megan A., DSouza, Karen N., Riggan, Kirsten A., Juhn, Young, Patten, Christi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223170/
https://www.ncbi.nlm.nih.gov/pubmed/34221455
http://dx.doi.org/10.1017/cts.2021.399
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author Orellana, Minerva
Valdez-Soto, Miguel
Brockman, Tabetha A.
Balls-Berry, Joyce E.
Zavala Rocha, Maria Guadalupe
Allyse, Megan A.
DSouza, Karen N.
Riggan, Kirsten A.
Juhn, Young
Patten, Christi
author_facet Orellana, Minerva
Valdez-Soto, Miguel
Brockman, Tabetha A.
Balls-Berry, Joyce E.
Zavala Rocha, Maria Guadalupe
Allyse, Megan A.
DSouza, Karen N.
Riggan, Kirsten A.
Juhn, Young
Patten, Christi
author_sort Orellana, Minerva
collection PubMed
description Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11–17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research.
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spelling pubmed-82231702021-07-01 Creating a pediatric advisory board for engaging youth in pediatric health research: A case study Orellana, Minerva Valdez-Soto, Miguel Brockman, Tabetha A. Balls-Berry, Joyce E. Zavala Rocha, Maria Guadalupe Allyse, Megan A. DSouza, Karen N. Riggan, Kirsten A. Juhn, Young Patten, Christi J Clin Transl Sci Brief Report Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11–17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research. Cambridge University Press 2021-03-30 /pmc/articles/PMC8223170/ /pubmed/34221455 http://dx.doi.org/10.1017/cts.2021.399 Text en © The Association for Clinical and Translational Science 2021 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Brief Report
Orellana, Minerva
Valdez-Soto, Miguel
Brockman, Tabetha A.
Balls-Berry, Joyce E.
Zavala Rocha, Maria Guadalupe
Allyse, Megan A.
DSouza, Karen N.
Riggan, Kirsten A.
Juhn, Young
Patten, Christi
Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title_full Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title_fullStr Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title_full_unstemmed Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title_short Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
title_sort creating a pediatric advisory board for engaging youth in pediatric health research: a case study
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223170/
https://www.ncbi.nlm.nih.gov/pubmed/34221455
http://dx.doi.org/10.1017/cts.2021.399
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