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Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth a...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223170/ https://www.ncbi.nlm.nih.gov/pubmed/34221455 http://dx.doi.org/10.1017/cts.2021.399 |
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author | Orellana, Minerva Valdez-Soto, Miguel Brockman, Tabetha A. Balls-Berry, Joyce E. Zavala Rocha, Maria Guadalupe Allyse, Megan A. DSouza, Karen N. Riggan, Kirsten A. Juhn, Young Patten, Christi |
author_facet | Orellana, Minerva Valdez-Soto, Miguel Brockman, Tabetha A. Balls-Berry, Joyce E. Zavala Rocha, Maria Guadalupe Allyse, Megan A. DSouza, Karen N. Riggan, Kirsten A. Juhn, Young Patten, Christi |
author_sort | Orellana, Minerva |
collection | PubMed |
description | Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11–17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research. |
format | Online Article Text |
id | pubmed-8223170 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-82231702021-07-01 Creating a pediatric advisory board for engaging youth in pediatric health research: A case study Orellana, Minerva Valdez-Soto, Miguel Brockman, Tabetha A. Balls-Berry, Joyce E. Zavala Rocha, Maria Guadalupe Allyse, Megan A. DSouza, Karen N. Riggan, Kirsten A. Juhn, Young Patten, Christi J Clin Transl Sci Brief Report Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11–17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research. Cambridge University Press 2021-03-30 /pmc/articles/PMC8223170/ /pubmed/34221455 http://dx.doi.org/10.1017/cts.2021.399 Text en © The Association for Clinical and Translational Science 2021 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Brief Report Orellana, Minerva Valdez-Soto, Miguel Brockman, Tabetha A. Balls-Berry, Joyce E. Zavala Rocha, Maria Guadalupe Allyse, Megan A. DSouza, Karen N. Riggan, Kirsten A. Juhn, Young Patten, Christi Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title | Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title_full | Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title_fullStr | Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title_full_unstemmed | Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title_short | Creating a pediatric advisory board for engaging youth in pediatric health research: A case study |
title_sort | creating a pediatric advisory board for engaging youth in pediatric health research: a case study |
topic | Brief Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223170/ https://www.ncbi.nlm.nih.gov/pubmed/34221455 http://dx.doi.org/10.1017/cts.2021.399 |
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