Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

BACKGROUND: We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). METHODS: We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of whic...

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Detalles Bibliográficos
Autores principales: Kerstens, Hans C. J. W., Van Lith, Bas J. H., Nijkrake, Maarten J., De Swart, Bert J. M., Van den Bemd, Laura A. C., Smeets, Rob J. E. M., Klemens, Fheodoroff, Van de Warrenburg, Bart P. C., Van der Wees, Philip J., Geurts, Alexander C. H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8223283/
https://www.ncbi.nlm.nih.gov/pubmed/34167574
http://dx.doi.org/10.1186/s13023-021-01915-0

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