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Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia

BACKGROUND & OBJECTIVES: Cognitive and other neurodegenerative conditions related to ageing have become public health priorities in low- and middle-income countries. However, contextually based, applied research to support the development of awareness, diagnosis and care pathways for people with...

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Autores principales: Leroi, Iracema, Vaitheswaran, Sridhar, Sheikh, Saima, Chaudhry, Nasim, Goswami, S.P., Miah, Jahanara, Sakel, Mohamed, Tofique, Sehrish, Husain, Nusrat
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8224155/
https://www.ncbi.nlm.nih.gov/pubmed/34145101
http://dx.doi.org/10.4103/ijmr.IJMR_2095_19
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author Leroi, Iracema
Vaitheswaran, Sridhar
Sheikh, Saima
Chaudhry, Nasim
Goswami, S.P.
Miah, Jahanara
Sakel, Mohamed
Tofique, Sehrish
Husain, Nusrat
author_facet Leroi, Iracema
Vaitheswaran, Sridhar
Sheikh, Saima
Chaudhry, Nasim
Goswami, S.P.
Miah, Jahanara
Sakel, Mohamed
Tofique, Sehrish
Husain, Nusrat
author_sort Leroi, Iracema
collection PubMed
description BACKGROUND & OBJECTIVES: Cognitive and other neurodegenerative conditions related to ageing have become public health priorities in low- and middle-income countries. However, contextually based, applied research to support the development of awareness, diagnosis and care pathways for people with dementia in South Asia is still largely undeveloped. This study was aimed to use applied research studies for dementia in South Asia as exemplars of how individual-level capacity and capability building for dementia research can be achieved. METHODS: Using Theory of Change as a framework, we embedded capacity and capability building into the studies through six domains: people (human resources), research integrity and governance, study delivery skills, international collaborative working, patient and public involvement (PPI) (awareness raising, stigma and health literacy) and development of ‘pathways’. For each aspect, development goals were defined and how they would be achieved. RESULTS: New principal investigators, research assistants (including outcome raters), study coordinators and intervention practitioners were trained across eight study sites in India, Pakistan, and Bangladesh, for dementia research. Training was delivered at study start, and through booster sessions, using workshops, face-to-face sessions, online training and video-link sessions. International collaborations were fostered, leading to a proposal for international funding. Each study site co-created PPI events to raise awareness and to inform the research. The recruitment pathways and study logistics fostered the development dementia diagnosis and care pathways. INTERPRETATION & CONCLUSIONS: Embedding capacity and capability building in applied dementia research in South Asia fosters the sustainability of dementia research, which is essential in developing diagnostic and care pathways.
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spelling pubmed-82241552021-07-02 Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia Leroi, Iracema Vaitheswaran, Sridhar Sheikh, Saima Chaudhry, Nasim Goswami, S.P. Miah, Jahanara Sakel, Mohamed Tofique, Sehrish Husain, Nusrat Indian J Med Res Original Article BACKGROUND & OBJECTIVES: Cognitive and other neurodegenerative conditions related to ageing have become public health priorities in low- and middle-income countries. However, contextually based, applied research to support the development of awareness, diagnosis and care pathways for people with dementia in South Asia is still largely undeveloped. This study was aimed to use applied research studies for dementia in South Asia as exemplars of how individual-level capacity and capability building for dementia research can be achieved. METHODS: Using Theory of Change as a framework, we embedded capacity and capability building into the studies through six domains: people (human resources), research integrity and governance, study delivery skills, international collaborative working, patient and public involvement (PPI) (awareness raising, stigma and health literacy) and development of ‘pathways’. For each aspect, development goals were defined and how they would be achieved. RESULTS: New principal investigators, research assistants (including outcome raters), study coordinators and intervention practitioners were trained across eight study sites in India, Pakistan, and Bangladesh, for dementia research. Training was delivered at study start, and through booster sessions, using workshops, face-to-face sessions, online training and video-link sessions. International collaborations were fostered, leading to a proposal for international funding. Each study site co-created PPI events to raise awareness and to inform the research. The recruitment pathways and study logistics fostered the development dementia diagnosis and care pathways. INTERPRETATION & CONCLUSIONS: Embedding capacity and capability building in applied dementia research in South Asia fosters the sustainability of dementia research, which is essential in developing diagnostic and care pathways. Wolters Kluwer - Medknow 2020-12 /pmc/articles/PMC8224155/ /pubmed/34145101 http://dx.doi.org/10.4103/ijmr.IJMR_2095_19 Text en Copyright: © 2021 Indian Journal of Medical Research https://creativecommons.org/licenses/by-nc-sa/4.0/This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Leroi, Iracema
Vaitheswaran, Sridhar
Sheikh, Saima
Chaudhry, Nasim
Goswami, S.P.
Miah, Jahanara
Sakel, Mohamed
Tofique, Sehrish
Husain, Nusrat
Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title_full Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title_fullStr Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title_full_unstemmed Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title_short Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia
title_sort capacity & capability building for applied dementia research in low- & middle-income countries: two exemplars from south asia
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8224155/
https://www.ncbi.nlm.nih.gov/pubmed/34145101
http://dx.doi.org/10.4103/ijmr.IJMR_2095_19
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