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Letting the patients speak: an in-depth, qualitative research-based investigation of factors relevant to health-related quality of life in real-world patients with hereditary angioedema using subcutaneous C1 inhibitor replacement therapy
BACKGROUND: While many studies of effective hereditary angioedema (HAE) therapy have demonstrated improved health-related quality of life (HRQoL) using validated instruments, specific reasons behind the improved scores have never been investigated using qualitative methods. A non-interventional, qua...
Autores principales: | Anderson, John, Levy, Donald S., Lumry, William, Koochaki, Patricia, Lanar, Sally, Henry Li, H. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8237414/ https://www.ncbi.nlm.nih.gov/pubmed/34176500 http://dx.doi.org/10.1186/s13223-021-00550-5 |
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