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The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period

BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this st...

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Autores principales: Patel, Varsha, Perez‐Olivas, Gisela, Kroese, Biza Stenfert, Rogers, Gemma, Rose, John, Murphy, Glynis, Cooper, Vivien, Langdon, Peter E, Hiles, Steve, Clifford, Clair, Willner, Paul
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242525/
https://www.ncbi.nlm.nih.gov/pubmed/34226830
http://dx.doi.org/10.1111/jppi.12382
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author Patel, Varsha
Perez‐Olivas, Gisela
Kroese, Biza Stenfert
Rogers, Gemma
Rose, John
Murphy, Glynis
Cooper, Vivien
Langdon, Peter E
Hiles, Steve
Clifford, Clair
Willner, Paul
author_facet Patel, Varsha
Perez‐Olivas, Gisela
Kroese, Biza Stenfert
Rogers, Gemma
Rose, John
Murphy, Glynis
Cooper, Vivien
Langdon, Peter E
Hiles, Steve
Clifford, Clair
Willner, Paul
author_sort Patel, Varsha
collection PubMed
description BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. METHODS: Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. RESULTS: Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well‐being. CONCLUSIONS: The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed.
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spelling pubmed-82425252021-07-01 The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period Patel, Varsha Perez‐Olivas, Gisela Kroese, Biza Stenfert Rogers, Gemma Rose, John Murphy, Glynis Cooper, Vivien Langdon, Peter E Hiles, Steve Clifford, Clair Willner, Paul J Policy Pract Intellect Disabil Original Articles BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. METHODS: Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. RESULTS: Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well‐being. CONCLUSIONS: The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed. John Wiley & Sons, Inc. 2021-05-15 2021-12 /pmc/articles/PMC8242525/ /pubmed/34226830 http://dx.doi.org/10.1111/jppi.12382 Text en © 2021 The Authors. Journal of Policy and Practice in Intellectual Disabilities published by International Association for the Scientific Study of Intellectual and Developmental Disabilities and Wiley Periodicals LLC. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Patel, Varsha
Perez‐Olivas, Gisela
Kroese, Biza Stenfert
Rogers, Gemma
Rose, John
Murphy, Glynis
Cooper, Vivien
Langdon, Peter E
Hiles, Steve
Clifford, Clair
Willner, Paul
The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title_full The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title_fullStr The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title_full_unstemmed The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title_short The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
title_sort experiences of carers of adults with intellectual disabilities during the first covid‐19 lockdown period
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242525/
https://www.ncbi.nlm.nih.gov/pubmed/34226830
http://dx.doi.org/10.1111/jppi.12382
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