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The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period
BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this st...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley & Sons, Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242525/ https://www.ncbi.nlm.nih.gov/pubmed/34226830 http://dx.doi.org/10.1111/jppi.12382 |
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author | Patel, Varsha Perez‐Olivas, Gisela Kroese, Biza Stenfert Rogers, Gemma Rose, John Murphy, Glynis Cooper, Vivien Langdon, Peter E Hiles, Steve Clifford, Clair Willner, Paul |
author_facet | Patel, Varsha Perez‐Olivas, Gisela Kroese, Biza Stenfert Rogers, Gemma Rose, John Murphy, Glynis Cooper, Vivien Langdon, Peter E Hiles, Steve Clifford, Clair Willner, Paul |
author_sort | Patel, Varsha |
collection | PubMed |
description | BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. METHODS: Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. RESULTS: Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well‐being. CONCLUSIONS: The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed. |
format | Online Article Text |
id | pubmed-8242525 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley & Sons, Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-82425252021-07-01 The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period Patel, Varsha Perez‐Olivas, Gisela Kroese, Biza Stenfert Rogers, Gemma Rose, John Murphy, Glynis Cooper, Vivien Langdon, Peter E Hiles, Steve Clifford, Clair Willner, Paul J Policy Pract Intellect Disabil Original Articles BACKGROUND: The recent COVID‐19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. AIM: The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. METHODS: Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. RESULTS: Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well‐being. CONCLUSIONS: The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed. John Wiley & Sons, Inc. 2021-05-15 2021-12 /pmc/articles/PMC8242525/ /pubmed/34226830 http://dx.doi.org/10.1111/jppi.12382 Text en © 2021 The Authors. Journal of Policy and Practice in Intellectual Disabilities published by International Association for the Scientific Study of Intellectual and Developmental Disabilities and Wiley Periodicals LLC. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles Patel, Varsha Perez‐Olivas, Gisela Kroese, Biza Stenfert Rogers, Gemma Rose, John Murphy, Glynis Cooper, Vivien Langdon, Peter E Hiles, Steve Clifford, Clair Willner, Paul The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title | The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title_full | The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title_fullStr | The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title_full_unstemmed | The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title_short | The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period |
title_sort | experiences of carers of adults with intellectual disabilities during the first covid‐19 lockdown period |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242525/ https://www.ncbi.nlm.nih.gov/pubmed/34226830 http://dx.doi.org/10.1111/jppi.12382 |
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