Cargando…

Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach

INTRODUCTION: Multidisciplinary management of women‐specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). AIM: To support appropriate multidisciplinary care for WBD in haemophilia treatment centres....

Descripción completa

Detalles Bibliográficos
Autores principales:	Mauser‐Bunschoten, Eveline P., Kadir, Rezan A., Laan, Ellen T. M., Elfvinge, Petra, Haverman, Lotte, Teela, Lorynn, Degenaar, Manon E. L., Fransen van de Putte, Dietje E., D'Oiron, Roseline, van Galen, Karin P. M.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2020
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8246991/ https://www.ncbi.nlm.nih.gov/pubmed/33314402 http://dx.doi.org/10.1111/hae.14221

Ejemplares similares

Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
por: van Galen, Karin P. M., et al.
Publicado: (2020)

A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
por: van Oers, Hedy A., et al.
Publicado: (2020)

The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department
por: Veltkamp, Floor, et al.
Publicado: (2022)

Liver‐related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders
por: Isfordink, Cas J., et al.
Publicado: (2022)

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review
por: Bele, Sumedh, et al.
Publicado: (2020)

BMI is an important determinant of VWF and FVIII levels and bleeding phenotype in patients with von Willebrand disease
por: Atiq, Ferdows, et al.
Publicado: (2019)

ADAMTS‐13 and bleeding phenotype in von Willebrand disease
por: Boender, Johan, et al.
Publicado: (2020)

Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
por: van Muilekom, Maud M., et al.
Publicado: (2021)

Correction to: Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
por: van Muilekom, Maud M., et al.
Publicado: (2022)

Distress in parents of children with first-onset steroid-sensitive nephrotic syndrome
por: Veltkamp, Floor, et al.
Publicado: (2023)

The experience of postpartum bleeding in women with inherited bleeding disorders
por: VanderMeulen, Heather, et al.
Publicado: (2019)

Including the voice of paediatric patients: Cocreation of an engagement game
por: Teela, Lorynn, et al.
Publicado: (2022)

A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH
por: van Galen, Karin P. M., et al.
Publicado: (2021)

Long-term impact of joint bleeds in von Willebrand disease: a nested case-control study
por: van Galen, Karin P.M., et al.
Publicado: (2017)

Perceived stress, family impact, and changes in physical and social daily life activities of children with chronic somatic conditions during the COVID-19 pandemic
por: Krijger, Anne, et al.
Publicado: (2022)

A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy
por: Punt, Marieke C., et al.
Publicado: (2021)

Fundamentals for a Systematic Approach to Mild and Moderate Inherited Bleeding Disorders: An EHA Consensus Report
por: Rodeghiero, Francesco, et al.
Publicado: (2019)

Bleeding risk of surgery and its prevention in patients with inherited platelet disorders
por: Orsini, Sara, et al.
Publicado: (2017)

Menstrual and obstetrical bleeding in women with inherited platelet receptor defects—A systematic review
por: Punt, Marieke C., et al.
Publicado: (2020)

Health-related quality of life of children with first onset steroid-sensitive nephrotic syndrome
por: Veltkamp, Floor, et al.
Publicado: (2023)

Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
por: Teela, Lorynn, et al.
Publicado: (2020)

Use of Patient-Reported Experience Measures in Pediatric Care: A Systematic Review
por: Bele, Sumedh, et al.
Publicado: (2021)

Surgery in rare bleeding disorders: the prospective MARACHI study
por: Rousseau, Florence, et al.
Publicado: (2023)

Inherited Bleeding Disorders in Iraq and Consanguineous Marriage
por: Al-Rahal, Nidal Karim
Publicado: (2018)

The International Prospective Glanzmann Thrombasthenia Registry: Pediatric Treatment and Outcomes
por: Zotz, Rainer B., et al.
Publicado: (2019)

Gene of the issue: RUNX1 mutations and inherited bleeding
por: Morgan, Neil V., et al.
Publicado: (2017)

Immune complications and their management in inherited and acquired bleeding disorders
por: Arruda, Valder R., et al.
Publicado: (2022)

Major differences in clinical presentation, diagnosis and management of men and women with autosomal inherited bleeding disorders
por: Atiq, F., et al.
Publicado: (2021)

“If I wasn't a girl”: Experiences of adolescent girls with heavy menstrual bleeding and inherited bleeding disorders
por: Parker, Mackenzie, et al.
Publicado: (2022)

Pediatric patient engagement in clinical care, research and intervention development: a scoping review
por: Teela, Lorynn, et al.
Publicado: (2023)

Effectiveness of long‐term prophylaxis using pdFVIII/VWF concentrate in patients with inherited von Willebrand disease
por: Rugeri, Lucia, et al.
Publicado: (2022)

Evaluation the dentists’ awareness of inherited bleeding disorders and anticoagulants in Shiraz
por: Robati, R, et al.
Publicado: (2013)

Inherited Bleeding Disorders—Experience of a Not-for-Profit Organization in Pakistan
por: Hussain, Shabneez, et al.
Publicado: (2018)

The Glanzmann Thrombasthenia Registry: safety of platelet therapy in patients with Glanzmann thrombasthenia and changes in alloimmunization status
por: Poon, Man-Chiu, et al.
Publicado: (2023)

To Bleed or Not to Bleed
por: Iskander, Peter A, et al.
Publicado: (2023)

The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents
por: Luijten, Michiel A. J., et al.
Publicado: (2021)

Updated Australian consensus statement on management of inherited bleeding disorders in pregnancy
por: Dunkley, Scott, et al.
Publicado: (2019)

Preoperative diagnosis and management of inherited bleeding disorders in female adolescents and adults
por: Wilson, R. Douglas
Publicado: (2023)

PB2675: QUALITY OF LIFE IN INDIAN ADULTS WITH INHERITED BLEEDING DISORDERS
por: Satish, Samudyata, et al.
Publicado: (2023)

Patient‐reported outcomes in autosomal inherited bleeding disorders: A systematic literature review
por: van Hoorn, Evelien S., et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_879b4srf4b45s0ln2rsf0pcigg