Parents’ perspectives on nusinersen treatment for children with spinal muscular atrophy

AIM: To gain insight into parents’ perspectives about their decision‐making process concerning nusinersen treatment for their child, including perceived needs and concerns, and to explore factors that influence this process. METHOD: This was an exploratory qualitative interview study among parents o...

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Detalles Bibliográficos
Autores principales: van Kruijsbergen, Mette, Schröder, Carin D, Ketelaar, Marjolijn, van der Pol, W Ludo, Cuppen, Inge, van der Geest, Annette, Asselman, Fay‐Lynn, Fischer, Maarten J, Visser‐Meily, Johanna M A, Kars, Marijke C
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8248060/
https://www.ncbi.nlm.nih.gov/pubmed/33550591
http://dx.doi.org/10.1111/dmcn.14825

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