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Genetic discrimination: introducing the Asian perspective to the debate

Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing...

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Autores principales: Kim, Hannah, Ho, Calvin W. L., Ho, Chih-Hsing, Athira, P. S., Kato, Kazuto, De Castro, Leonardo, Kang, Hui, Huxtable, Richard, Zwart, Hub, Ives, Jonathan, Lee, Ilhak, Joly, Yann, Kim, So Yoon
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249378/
https://www.ncbi.nlm.nih.gov/pubmed/34210984
http://dx.doi.org/10.1038/s41525-021-00218-4
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author Kim, Hannah
Ho, Calvin W. L.
Ho, Chih-Hsing
Athira, P. S.
Kato, Kazuto
De Castro, Leonardo
Kang, Hui
Huxtable, Richard
Zwart, Hub
Ives, Jonathan
Lee, Ilhak
Joly, Yann
Kim, So Yoon
author_facet Kim, Hannah
Ho, Calvin W. L.
Ho, Chih-Hsing
Athira, P. S.
Kato, Kazuto
De Castro, Leonardo
Kang, Hui
Huxtable, Richard
Zwart, Hub
Ives, Jonathan
Lee, Ilhak
Joly, Yann
Kim, So Yoon
author_sort Kim, Hannah
collection PubMed
description Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
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spelling pubmed-82493782021-07-20 Genetic discrimination: introducing the Asian perspective to the debate Kim, Hannah Ho, Calvin W. L. Ho, Chih-Hsing Athira, P. S. Kato, Kazuto De Castro, Leonardo Kang, Hui Huxtable, Richard Zwart, Hub Ives, Jonathan Lee, Ilhak Joly, Yann Kim, So Yoon NPJ Genom Med Review Article Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism. Nature Publishing Group UK 2021-07-01 /pmc/articles/PMC8249378/ /pubmed/34210984 http://dx.doi.org/10.1038/s41525-021-00218-4 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Review Article
Kim, Hannah
Ho, Calvin W. L.
Ho, Chih-Hsing
Athira, P. S.
Kato, Kazuto
De Castro, Leonardo
Kang, Hui
Huxtable, Richard
Zwart, Hub
Ives, Jonathan
Lee, Ilhak
Joly, Yann
Kim, So Yoon
Genetic discrimination: introducing the Asian perspective to the debate
title Genetic discrimination: introducing the Asian perspective to the debate
title_full Genetic discrimination: introducing the Asian perspective to the debate
title_fullStr Genetic discrimination: introducing the Asian perspective to the debate
title_full_unstemmed Genetic discrimination: introducing the Asian perspective to the debate
title_short Genetic discrimination: introducing the Asian perspective to the debate
title_sort genetic discrimination: introducing the asian perspective to the debate
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249378/
https://www.ncbi.nlm.nih.gov/pubmed/34210984
http://dx.doi.org/10.1038/s41525-021-00218-4
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