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Genetic discrimination: introducing the Asian perspective to the debate
Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group UK
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249378/ https://www.ncbi.nlm.nih.gov/pubmed/34210984 http://dx.doi.org/10.1038/s41525-021-00218-4 |
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author | Kim, Hannah Ho, Calvin W. L. Ho, Chih-Hsing Athira, P. S. Kato, Kazuto De Castro, Leonardo Kang, Hui Huxtable, Richard Zwart, Hub Ives, Jonathan Lee, Ilhak Joly, Yann Kim, So Yoon |
author_facet | Kim, Hannah Ho, Calvin W. L. Ho, Chih-Hsing Athira, P. S. Kato, Kazuto De Castro, Leonardo Kang, Hui Huxtable, Richard Zwart, Hub Ives, Jonathan Lee, Ilhak Joly, Yann Kim, So Yoon |
author_sort | Kim, Hannah |
collection | PubMed |
description | Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism. |
format | Online Article Text |
id | pubmed-8249378 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Nature Publishing Group UK |
record_format | MEDLINE/PubMed |
spelling | pubmed-82493782021-07-20 Genetic discrimination: introducing the Asian perspective to the debate Kim, Hannah Ho, Calvin W. L. Ho, Chih-Hsing Athira, P. S. Kato, Kazuto De Castro, Leonardo Kang, Hui Huxtable, Richard Zwart, Hub Ives, Jonathan Lee, Ilhak Joly, Yann Kim, So Yoon NPJ Genom Med Review Article Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism. Nature Publishing Group UK 2021-07-01 /pmc/articles/PMC8249378/ /pubmed/34210984 http://dx.doi.org/10.1038/s41525-021-00218-4 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Review Article Kim, Hannah Ho, Calvin W. L. Ho, Chih-Hsing Athira, P. S. Kato, Kazuto De Castro, Leonardo Kang, Hui Huxtable, Richard Zwart, Hub Ives, Jonathan Lee, Ilhak Joly, Yann Kim, So Yoon Genetic discrimination: introducing the Asian perspective to the debate |
title | Genetic discrimination: introducing the Asian perspective to the debate |
title_full | Genetic discrimination: introducing the Asian perspective to the debate |
title_fullStr | Genetic discrimination: introducing the Asian perspective to the debate |
title_full_unstemmed | Genetic discrimination: introducing the Asian perspective to the debate |
title_short | Genetic discrimination: introducing the Asian perspective to the debate |
title_sort | genetic discrimination: introducing the asian perspective to the debate |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249378/ https://www.ncbi.nlm.nih.gov/pubmed/34210984 http://dx.doi.org/10.1038/s41525-021-00218-4 |
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