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Women and leprosy: interferences and experiences*

OBJECTIVE: to know the interferences of leprosy in women's lives and how they reinvent themselves in coping with the disease. METHOD: a descriptive study with a qualitative approach. The theoretical-methodological framework adopts an approximation to the cartographic method and some concepts of...

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Autores principales: Gonçalves, Marcela, Santos, Karen da Silva, da Silva, Simone Santana, Marcussi, Thalita Caroline Cardoso, Carvalho, Kisa Valladão, Fortuna, Cinira Magali
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8253373/
https://www.ncbi.nlm.nih.gov/pubmed/34231786
http://dx.doi.org/10.1590/1518-8345.4347.3419
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author Gonçalves, Marcela
Santos, Karen da Silva
da Silva, Simone Santana
Marcussi, Thalita Caroline Cardoso
Carvalho, Kisa Valladão
Fortuna, Cinira Magali
author_facet Gonçalves, Marcela
Santos, Karen da Silva
da Silva, Simone Santana
Marcussi, Thalita Caroline Cardoso
Carvalho, Kisa Valladão
Fortuna, Cinira Magali
author_sort Gonçalves, Marcela
collection PubMed
description OBJECTIVE: to know the interferences of leprosy in women's lives and how they reinvent themselves in coping with the disease. METHOD: a descriptive study with a qualitative approach. The theoretical-methodological framework adopts an approximation to the cartographic method and some concepts of schizoanalysis, which were used to analyze the data. The tools used to produce the data were the interview and the logbook. The interviews were conducted from July to November 2019, at the participants' homes. RESULTS: the group consisted of nine women. To display the data, we were inspired by Deleuze's ideas about difference and repetition. The results were organized in three thematic axes that address the lives of these women affected by leprosy, which accompany concerns, anxieties and worries about the effects of the disease. The transformations in the female body, the financial maintenance itself due to the comorbidities caused by leprosy and its difficulties in guaranteeing rights are elements strongly pointed out by women. CONCLUSION: there is overlap and interference of the female condition in a patriarchal society that still accompanies it. We bet on the strength of becoming-a-woman and the need to consider them in their singularities and in their context for producing care permeated by meetings of the affirmation of the power of life.
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spelling pubmed-82533732021-07-13 Women and leprosy: interferences and experiences* Gonçalves, Marcela Santos, Karen da Silva da Silva, Simone Santana Marcussi, Thalita Caroline Cardoso Carvalho, Kisa Valladão Fortuna, Cinira Magali Rev Lat Am Enfermagem Original Article OBJECTIVE: to know the interferences of leprosy in women's lives and how they reinvent themselves in coping with the disease. METHOD: a descriptive study with a qualitative approach. The theoretical-methodological framework adopts an approximation to the cartographic method and some concepts of schizoanalysis, which were used to analyze the data. The tools used to produce the data were the interview and the logbook. The interviews were conducted from July to November 2019, at the participants' homes. RESULTS: the group consisted of nine women. To display the data, we were inspired by Deleuze's ideas about difference and repetition. The results were organized in three thematic axes that address the lives of these women affected by leprosy, which accompany concerns, anxieties and worries about the effects of the disease. The transformations in the female body, the financial maintenance itself due to the comorbidities caused by leprosy and its difficulties in guaranteeing rights are elements strongly pointed out by women. CONCLUSION: there is overlap and interference of the female condition in a patriarchal society that still accompanies it. We bet on the strength of becoming-a-woman and the need to consider them in their singularities and in their context for producing care permeated by meetings of the affirmation of the power of life. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2021-07-02 /pmc/articles/PMC8253373/ /pubmed/34231786 http://dx.doi.org/10.1590/1518-8345.4347.3419 Text en Copyright © 2020 Revista Latino-Americana de Enfermagem https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Gonçalves, Marcela
Santos, Karen da Silva
da Silva, Simone Santana
Marcussi, Thalita Caroline Cardoso
Carvalho, Kisa Valladão
Fortuna, Cinira Magali
Women and leprosy: interferences and experiences*
title Women and leprosy: interferences and experiences*
title_full Women and leprosy: interferences and experiences*
title_fullStr Women and leprosy: interferences and experiences*
title_full_unstemmed Women and leprosy: interferences and experiences*
title_short Women and leprosy: interferences and experiences*
title_sort women and leprosy: interferences and experiences*
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8253373/
https://www.ncbi.nlm.nih.gov/pubmed/34231786
http://dx.doi.org/10.1590/1518-8345.4347.3419
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