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Understanding culturally safe cancer survivorship care with inuit in an urban community

Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and...

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Autores principales: Enuaraq, Sipporah, Gifford, Wendy, Ashton, Savanah, Al Awar, Zeina, Larocque, Catherine, Rolfe, Danielle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/
https://www.ncbi.nlm.nih.gov/pubmed/34219604
http://dx.doi.org/10.1080/22423982.2021.1949843
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author Enuaraq, Sipporah
Gifford, Wendy
Ashton, Savanah
Al Awar, Zeina
Larocque, Catherine
Rolfe, Danielle
author_facet Enuaraq, Sipporah
Gifford, Wendy
Ashton, Savanah
Al Awar, Zeina
Larocque, Catherine
Rolfe, Danielle
author_sort Enuaraq, Sipporah
collection PubMed
description Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis. Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required.
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spelling pubmed-82598242021-07-13 Understanding culturally safe cancer survivorship care with inuit in an urban community Enuaraq, Sipporah Gifford, Wendy Ashton, Savanah Al Awar, Zeina Larocque, Catherine Rolfe, Danielle Int J Circumpolar Health Original Research Article Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis. Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required. Taylor & Francis 2021-07-05 /pmc/articles/PMC8259824/ /pubmed/34219604 http://dx.doi.org/10.1080/22423982.2021.1949843 Text en © 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Article
Enuaraq, Sipporah
Gifford, Wendy
Ashton, Savanah
Al Awar, Zeina
Larocque, Catherine
Rolfe, Danielle
Understanding culturally safe cancer survivorship care with inuit in an urban community
title Understanding culturally safe cancer survivorship care with inuit in an urban community
title_full Understanding culturally safe cancer survivorship care with inuit in an urban community
title_fullStr Understanding culturally safe cancer survivorship care with inuit in an urban community
title_full_unstemmed Understanding culturally safe cancer survivorship care with inuit in an urban community
title_short Understanding culturally safe cancer survivorship care with inuit in an urban community
title_sort understanding culturally safe cancer survivorship care with inuit in an urban community
topic Original Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/
https://www.ncbi.nlm.nih.gov/pubmed/34219604
http://dx.doi.org/10.1080/22423982.2021.1949843
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