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Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review

BACKGROUND: Uncertainty surrounds the ethical and legal implications of algorithmic and data-driven technologies in the mental health context, including technologies characterized as artificial intelligence, machine learning, deep learning, and other forms of automation. OBJECTIVE: This study aims t...

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Detalles Bibliográficos
Autores principales: Gooding, Piers, Kariotis, Timothy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8262551/
https://www.ncbi.nlm.nih.gov/pubmed/34110297
http://dx.doi.org/10.2196/24668
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author Gooding, Piers
Kariotis, Timothy
author_facet Gooding, Piers
Kariotis, Timothy
author_sort Gooding, Piers
collection PubMed
description BACKGROUND: Uncertainty surrounds the ethical and legal implications of algorithmic and data-driven technologies in the mental health context, including technologies characterized as artificial intelligence, machine learning, deep learning, and other forms of automation. OBJECTIVE: This study aims to survey empirical scholarly literature on the application of algorithmic and data-driven technologies in mental health initiatives to identify the legal and ethical issues that have been raised. METHODS: We searched for peer-reviewed empirical studies on the application of algorithmic technologies in mental health care in the Scopus, Embase, and Association for Computing Machinery databases. A total of 1078 relevant peer-reviewed applied studies were identified, which were narrowed to 132 empirical research papers for review based on selection criteria. Conventional content analysis was undertaken to address our aims, and this was supplemented by a keyword-in-context analysis. RESULTS: We grouped the findings into the following five categories of technology: social media (53/132, 40.1%), smartphones (37/132, 28%), sensing technology (20/132, 15.1%), chatbots (5/132, 3.8%), and miscellaneous (17/132, 12.9%). Most initiatives were directed toward detection and diagnosis. Most papers discussed privacy, mainly in terms of respecting the privacy of research participants. There was relatively little discussion of privacy in this context. A small number of studies discussed ethics directly (10/132, 7.6%) and indirectly (10/132, 7.6%). Legal issues were not substantively discussed in any studies, although some legal issues were discussed in passing (7/132, 5.3%), such as the rights of user subjects and privacy law compliance. CONCLUSIONS: Ethical and legal issues tend to not be explicitly addressed in empirical studies on algorithmic and data-driven technologies in mental health initiatives. Scholars may have considered ethical or legal matters at the ethics committee or institutional review board stage. If so, this consideration seldom appears in published materials in applied research in any detail. The form itself of peer-reviewed papers that detail applied research in this field may well preclude a substantial focus on ethics and law. Regardless, we identified several concerns, including the near-complete lack of involvement of mental health service users, the scant consideration of algorithmic accountability, and the potential for overmedicalization and techno-solutionism. Most papers were published in the computer science field at the pilot or exploratory stages. Thus, these technologies could be appropriated into practice in rarely acknowledged ways, with serious legal and ethical implications.
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spelling pubmed-82625512021-07-27 Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review Gooding, Piers Kariotis, Timothy JMIR Ment Health Review BACKGROUND: Uncertainty surrounds the ethical and legal implications of algorithmic and data-driven technologies in the mental health context, including technologies characterized as artificial intelligence, machine learning, deep learning, and other forms of automation. OBJECTIVE: This study aims to survey empirical scholarly literature on the application of algorithmic and data-driven technologies in mental health initiatives to identify the legal and ethical issues that have been raised. METHODS: We searched for peer-reviewed empirical studies on the application of algorithmic technologies in mental health care in the Scopus, Embase, and Association for Computing Machinery databases. A total of 1078 relevant peer-reviewed applied studies were identified, which were narrowed to 132 empirical research papers for review based on selection criteria. Conventional content analysis was undertaken to address our aims, and this was supplemented by a keyword-in-context analysis. RESULTS: We grouped the findings into the following five categories of technology: social media (53/132, 40.1%), smartphones (37/132, 28%), sensing technology (20/132, 15.1%), chatbots (5/132, 3.8%), and miscellaneous (17/132, 12.9%). Most initiatives were directed toward detection and diagnosis. Most papers discussed privacy, mainly in terms of respecting the privacy of research participants. There was relatively little discussion of privacy in this context. A small number of studies discussed ethics directly (10/132, 7.6%) and indirectly (10/132, 7.6%). Legal issues were not substantively discussed in any studies, although some legal issues were discussed in passing (7/132, 5.3%), such as the rights of user subjects and privacy law compliance. CONCLUSIONS: Ethical and legal issues tend to not be explicitly addressed in empirical studies on algorithmic and data-driven technologies in mental health initiatives. Scholars may have considered ethical or legal matters at the ethics committee or institutional review board stage. If so, this consideration seldom appears in published materials in applied research in any detail. The form itself of peer-reviewed papers that detail applied research in this field may well preclude a substantial focus on ethics and law. Regardless, we identified several concerns, including the near-complete lack of involvement of mental health service users, the scant consideration of algorithmic accountability, and the potential for overmedicalization and techno-solutionism. Most papers were published in the computer science field at the pilot or exploratory stages. Thus, these technologies could be appropriated into practice in rarely acknowledged ways, with serious legal and ethical implications. JMIR Publications 2021-06-10 /pmc/articles/PMC8262551/ /pubmed/34110297 http://dx.doi.org/10.2196/24668 Text en ©Piers Gooding, Timothy Kariotis. Originally published in JMIR Mental Health (https://mental.jmir.org), 10.06.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on https://mental.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Review
Gooding, Piers
Kariotis, Timothy
Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title_full Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title_fullStr Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title_full_unstemmed Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title_short Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
title_sort ethics and law in research on algorithmic and data-driven technology in mental health care: scoping review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8262551/
https://www.ncbi.nlm.nih.gov/pubmed/34110297
http://dx.doi.org/10.2196/24668
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