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From statistics to clinics: the visual feedback of PROMIS® CATs
BACKGROUND: To reduce the burden of completing Patient-Reported Outcome Measures (PROMs), PROMIS® Computerized Adaptive Tests (CATs) are being implemented in pediatric clinical practice. We aimed to develop recommendations for visual feedback options for PROMIS CATs on individual item and domain sco...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8272760/ https://www.ncbi.nlm.nih.gov/pubmed/34245390 http://dx.doi.org/10.1186/s41687-021-00324-y |
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author | van Muilekom, Maud M. Luijten, Michiel A. J. van Oers, Hedy A. Terwee, Caroline B. van Litsenburg, Raphaële R. L. Roorda, Leo D. Grootenhuis, Martha A. Haverman, Lotte |
author_facet | van Muilekom, Maud M. Luijten, Michiel A. J. van Oers, Hedy A. Terwee, Caroline B. van Litsenburg, Raphaële R. L. Roorda, Leo D. Grootenhuis, Martha A. Haverman, Lotte |
author_sort | van Muilekom, Maud M. |
collection | PubMed |
description | BACKGROUND: To reduce the burden of completing Patient-Reported Outcome Measures (PROMs), PROMIS® Computerized Adaptive Tests (CATs) are being implemented in pediatric clinical practice. We aimed to develop recommendations for visual feedback options for PROMIS CATs on individual item and domain score level as an evidence-based feedback recommendation for PROMIS CATs is lacking. METHODS: Focus groups were held with clinicians who use the KLIK PROM portal. Literature-based feedback options were provided to initiate group discussion. Data was analyzed using thematic coding method. Additionally, a questionnaire was sent out to assess patients’ (12-18y) and parents’ (child 0-18y) preference for individual item feedback. Data was analyzed using descriptive statistics. RESULTS: Six focus groups were held (N = 28 clinicians). Regarding individual item feedback, showing the complete item bank, with only responses to administered items in traffic light colors was preferred. For domain scores, line graphs were preferred, including numerical (T-)scores, reference and cut-off lines, and traffic light colors. Separate graphs per domain, ranked in order of importance and harmonization of directionality (‘higher = better’) were considered important. Questionnaire results (N = 31 patients/N = 131 parents) showed that viewing their own item responses was preferred above receiving no item feedback by 58.1% of the patients and 77.1% of the parents. CONCLUSIONS: Based on the outcomes and after discussion with the Dutch-Flemish PROMIS National Center, recommendations for PROMIS CAT feedback options were developed. PROMIS CATs can now be used in clinical practice to help clinicians monitor patient outcomes, while reducing the burden of completing PROMs for patients significantly. |
format | Online Article Text |
id | pubmed-8272760 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer International Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-82727602021-07-20 From statistics to clinics: the visual feedback of PROMIS® CATs van Muilekom, Maud M. Luijten, Michiel A. J. van Oers, Hedy A. Terwee, Caroline B. van Litsenburg, Raphaële R. L. Roorda, Leo D. Grootenhuis, Martha A. Haverman, Lotte J Patient Rep Outcomes Research BACKGROUND: To reduce the burden of completing Patient-Reported Outcome Measures (PROMs), PROMIS® Computerized Adaptive Tests (CATs) are being implemented in pediatric clinical practice. We aimed to develop recommendations for visual feedback options for PROMIS CATs on individual item and domain score level as an evidence-based feedback recommendation for PROMIS CATs is lacking. METHODS: Focus groups were held with clinicians who use the KLIK PROM portal. Literature-based feedback options were provided to initiate group discussion. Data was analyzed using thematic coding method. Additionally, a questionnaire was sent out to assess patients’ (12-18y) and parents’ (child 0-18y) preference for individual item feedback. Data was analyzed using descriptive statistics. RESULTS: Six focus groups were held (N = 28 clinicians). Regarding individual item feedback, showing the complete item bank, with only responses to administered items in traffic light colors was preferred. For domain scores, line graphs were preferred, including numerical (T-)scores, reference and cut-off lines, and traffic light colors. Separate graphs per domain, ranked in order of importance and harmonization of directionality (‘higher = better’) were considered important. Questionnaire results (N = 31 patients/N = 131 parents) showed that viewing their own item responses was preferred above receiving no item feedback by 58.1% of the patients and 77.1% of the parents. CONCLUSIONS: Based on the outcomes and after discussion with the Dutch-Flemish PROMIS National Center, recommendations for PROMIS CAT feedback options were developed. PROMIS CATs can now be used in clinical practice to help clinicians monitor patient outcomes, while reducing the burden of completing PROMs for patients significantly. Springer International Publishing 2021-07-10 /pmc/articles/PMC8272760/ /pubmed/34245390 http://dx.doi.org/10.1186/s41687-021-00324-y Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Research van Muilekom, Maud M. Luijten, Michiel A. J. van Oers, Hedy A. Terwee, Caroline B. van Litsenburg, Raphaële R. L. Roorda, Leo D. Grootenhuis, Martha A. Haverman, Lotte From statistics to clinics: the visual feedback of PROMIS® CATs |
title | From statistics to clinics: the visual feedback of PROMIS® CATs |
title_full | From statistics to clinics: the visual feedback of PROMIS® CATs |
title_fullStr | From statistics to clinics: the visual feedback of PROMIS® CATs |
title_full_unstemmed | From statistics to clinics: the visual feedback of PROMIS® CATs |
title_short | From statistics to clinics: the visual feedback of PROMIS® CATs |
title_sort | from statistics to clinics: the visual feedback of promis® cats |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8272760/ https://www.ncbi.nlm.nih.gov/pubmed/34245390 http://dx.doi.org/10.1186/s41687-021-00324-y |
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