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Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members

BACKGROUND: Appropriate choice of research design is essential to rightly understand the research problem and derive optimal solutions. The Comorbidity Action in the North project sought to better meet the needs of local people affected by drug, alcohol and mental health comorbidity. The aim of the...

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Autores principales: Sharmil, Hepsibah, Kelly, Janet, Bowden, Margaret, Galletly, Cherrie, Cairney, Imelda, Wilson, Coral, Hahn, Lisa, Liu, Dennis, Elliot, Paul, Else, Joanne, Warrior, Trevor, Wanganeen, Trevor, Taylor, Robert, Wanganeen, Frank, Madrid, Jodus, Warner, Lisa, Brown, Mandy, de Crespigny, Charlotte
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8274049/
https://www.ncbi.nlm.nih.gov/pubmed/34247644
http://dx.doi.org/10.1186/s12939-021-01493-4
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author Sharmil, Hepsibah
Kelly, Janet
Bowden, Margaret
Galletly, Cherrie
Cairney, Imelda
Wilson, Coral
Hahn, Lisa
Liu, Dennis
Elliot, Paul
Else, Joanne
Warrior, Trevor
Wanganeen, Trevor
Taylor, Robert
Wanganeen, Frank
Madrid, Jodus
Warner, Lisa
Brown, Mandy
de Crespigny, Charlotte
author_facet Sharmil, Hepsibah
Kelly, Janet
Bowden, Margaret
Galletly, Cherrie
Cairney, Imelda
Wilson, Coral
Hahn, Lisa
Liu, Dennis
Elliot, Paul
Else, Joanne
Warrior, Trevor
Wanganeen, Trevor
Taylor, Robert
Wanganeen, Frank
Madrid, Jodus
Warner, Lisa
Brown, Mandy
de Crespigny, Charlotte
author_sort Sharmil, Hepsibah
collection PubMed
description BACKGROUND: Appropriate choice of research design is essential to rightly understand the research problem and derive optimal solutions. The Comorbidity Action in the North project sought to better meet the needs of local people affected by drug, alcohol and mental health comorbidity. The aim of the study focused on the needs of Aboriginal peoples and on developing a truly representative research process. A methodology evolved that best suited working with members of a marginalised Aboriginal community. This paper discusses the process of co-design of a Western methodology (participatory action research) in conjunction with the Indigenous methodologies Dadirri and Ganma. This co-design enabled an international PhD student to work respectfully with Aboriginal community members and Elders, health professionals and consumers, and non-Indigenous service providers in a drug and alcohol and mental health comorbidity project in Adelaide, South Australia. METHODS: The PhD student, Aboriginal Elder mentor, Aboriginal Working Party, and supervisors (the research team) sought to co-design a methodology and applied it to address the following challenges: the PhD student was an international student with no existing relationship with local Aboriginal community members; many Aboriginal people deeply distrust Western research due to past poor practices and a lack of implementation of findings into practice; Aboriginal people often remain unheard, unacknowledged and unrecognised in research projects; drug and alcohol and mental health comorbidity experiences are often distressing for Aboriginal community members and their families; attempts to access comorbidity care often result in limited or no access; and Aboriginal community members experience acts of racism and discrimination as health professionals and consumers of health and support services. The research team considered deeply how knowledge is shared, interpreted, owned and controlled, by whom and how, within research, co-morbidity care and community settings. The PhD student was supported to co-design a methodology that was equitable, democratic, liberating and life-enhancing, with real potential to develop feasible solutions. RESULTS: The resulting combined Participatory Action Research (PAR)-Dadirri-Ganma methodology sought to create a bridge across Western and Aboriginal knowledges, understanding and experiences. Foundation pillars of this bridge were mentoring of the PhD student by senior Elders, who explained and demonstrated the critical importance of Yarning (consulting) and Indigenous methodologies of Dadirri (deep listening) and Ganma (two-way knowledge sharing), and discussions among all involved about the principles of Western PAR. CONCLUSIONS: Concepts within this paper are shared from the perspective of the PhD student with the permission and support of local Elders and Working Group members. The intention is to share what was learned for the benefit of other students, research projects and community members who are beginning a similar journey.
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spelling pubmed-82740492021-07-13 Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members Sharmil, Hepsibah Kelly, Janet Bowden, Margaret Galletly, Cherrie Cairney, Imelda Wilson, Coral Hahn, Lisa Liu, Dennis Elliot, Paul Else, Joanne Warrior, Trevor Wanganeen, Trevor Taylor, Robert Wanganeen, Frank Madrid, Jodus Warner, Lisa Brown, Mandy de Crespigny, Charlotte Int J Equity Health Research BACKGROUND: Appropriate choice of research design is essential to rightly understand the research problem and derive optimal solutions. The Comorbidity Action in the North project sought to better meet the needs of local people affected by drug, alcohol and mental health comorbidity. The aim of the study focused on the needs of Aboriginal peoples and on developing a truly representative research process. A methodology evolved that best suited working with members of a marginalised Aboriginal community. This paper discusses the process of co-design of a Western methodology (participatory action research) in conjunction with the Indigenous methodologies Dadirri and Ganma. This co-design enabled an international PhD student to work respectfully with Aboriginal community members and Elders, health professionals and consumers, and non-Indigenous service providers in a drug and alcohol and mental health comorbidity project in Adelaide, South Australia. METHODS: The PhD student, Aboriginal Elder mentor, Aboriginal Working Party, and supervisors (the research team) sought to co-design a methodology and applied it to address the following challenges: the PhD student was an international student with no existing relationship with local Aboriginal community members; many Aboriginal people deeply distrust Western research due to past poor practices and a lack of implementation of findings into practice; Aboriginal people often remain unheard, unacknowledged and unrecognised in research projects; drug and alcohol and mental health comorbidity experiences are often distressing for Aboriginal community members and their families; attempts to access comorbidity care often result in limited or no access; and Aboriginal community members experience acts of racism and discrimination as health professionals and consumers of health and support services. The research team considered deeply how knowledge is shared, interpreted, owned and controlled, by whom and how, within research, co-morbidity care and community settings. The PhD student was supported to co-design a methodology that was equitable, democratic, liberating and life-enhancing, with real potential to develop feasible solutions. RESULTS: The resulting combined Participatory Action Research (PAR)-Dadirri-Ganma methodology sought to create a bridge across Western and Aboriginal knowledges, understanding and experiences. Foundation pillars of this bridge were mentoring of the PhD student by senior Elders, who explained and demonstrated the critical importance of Yarning (consulting) and Indigenous methodologies of Dadirri (deep listening) and Ganma (two-way knowledge sharing), and discussions among all involved about the principles of Western PAR. CONCLUSIONS: Concepts within this paper are shared from the perspective of the PhD student with the permission and support of local Elders and Working Group members. The intention is to share what was learned for the benefit of other students, research projects and community members who are beginning a similar journey. BioMed Central 2021-07-12 /pmc/articles/PMC8274049/ /pubmed/34247644 http://dx.doi.org/10.1186/s12939-021-01493-4 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Sharmil, Hepsibah
Kelly, Janet
Bowden, Margaret
Galletly, Cherrie
Cairney, Imelda
Wilson, Coral
Hahn, Lisa
Liu, Dennis
Elliot, Paul
Else, Joanne
Warrior, Trevor
Wanganeen, Trevor
Taylor, Robert
Wanganeen, Frank
Madrid, Jodus
Warner, Lisa
Brown, Mandy
de Crespigny, Charlotte
Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title_full Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title_fullStr Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title_full_unstemmed Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title_short Participatory Action Research-Dadirri-Ganma, using Yarning: methodology co-design with Aboriginal community members
title_sort participatory action research-dadirri-ganma, using yarning: methodology co-design with aboriginal community members
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8274049/
https://www.ncbi.nlm.nih.gov/pubmed/34247644
http://dx.doi.org/10.1186/s12939-021-01493-4
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