Cargando…

“It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative

How best are we to understand appeals to participate in a biomedical project that are based both on invoking shared racial identity, and on framing engagement as the clear moral course of action? Stem cell donor recruitment, which often focuses on engaging racially minoritised communities, provides...

Descripción completa

Detalles Bibliográficos
Autor principal: Williams, Ros
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Palgrave Macmillan UK 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8275909/
https://www.ncbi.nlm.nih.gov/pubmed/34276806
http://dx.doi.org/10.1057/s41292-021-00241-9
_version_ 1783721806072381440
author Williams, Ros
author_facet Williams, Ros
author_sort Williams, Ros
collection PubMed
description How best are we to understand appeals to participate in a biomedical project that are based both on invoking shared racial identity, and on framing engagement as the clear moral course of action? Stem cell donor recruitment, which often focuses on engaging racially minoritised communities, provides useful insight into this question. This article proposes that it is not an essential mutual racial identity between the person asking and the person asked at play. Rather, it is the creative ‘doing’ of relatedness between people at the scale of race as well as family that coalesces into powerful appeals to participate. Through analysis of ethnographic, documentary and social media data, the paper argues that this work relies at least partly on framing donation as a duty of being part of a racialised community, which I describe here as an ethico-racial imperative, in which both race and responsibility become intertwined to compel participation in the biomedical project of donor registration. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1057/s41292-021-00241-9.
format Online
Article
Text
id pubmed-8275909
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Palgrave Macmillan UK
record_format MEDLINE/PubMed
spelling pubmed-82759092021-07-14 “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative Williams, Ros Biosocieties Original Article How best are we to understand appeals to participate in a biomedical project that are based both on invoking shared racial identity, and on framing engagement as the clear moral course of action? Stem cell donor recruitment, which often focuses on engaging racially minoritised communities, provides useful insight into this question. This article proposes that it is not an essential mutual racial identity between the person asking and the person asked at play. Rather, it is the creative ‘doing’ of relatedness between people at the scale of race as well as family that coalesces into powerful appeals to participate. Through analysis of ethnographic, documentary and social media data, the paper argues that this work relies at least partly on framing donation as a duty of being part of a racialised community, which I describe here as an ethico-racial imperative, in which both race and responsibility become intertwined to compel participation in the biomedical project of donor registration. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1057/s41292-021-00241-9. Palgrave Macmillan UK 2021-07-13 2021 /pmc/articles/PMC8275909/ /pubmed/34276806 http://dx.doi.org/10.1057/s41292-021-00241-9 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Article
Williams, Ros
“It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title_full “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title_fullStr “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title_full_unstemmed “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title_short “It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
title_sort “it’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8275909/
https://www.ncbi.nlm.nih.gov/pubmed/34276806
http://dx.doi.org/10.1057/s41292-021-00241-9
work_keys_str_mv AT williamsros itsharderforthelikesofusraciallyminoritisedstemcelldonationasethicoracialimperative