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An international policy on returning genomic research results

The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in geno...

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Detalles Bibliográficos
Autores principales: Lewis, Anna C. F., Knoppers, Bartha Maria, Green, Robert C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8281644/
https://www.ncbi.nlm.nih.gov/pubmed/34266500
http://dx.doi.org/10.1186/s13073-021-00928-5
Descripción
Sumario:The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country’s clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return.