An international policy on returning genomic research results

The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in geno...

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Autores principales: Lewis, Anna C. F., Knoppers, Bartha Maria, Green, Robert C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Comment
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8281644/
https://www.ncbi.nlm.nih.gov/pubmed/34266500
http://dx.doi.org/10.1186/s13073-021-00928-5
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author Lewis, Anna C. F.
Knoppers, Bartha Maria
Green, Robert C.
author_facet Lewis, Anna C. F.
Knoppers, Bartha Maria
Green, Robert C.
author_sort Lewis, Anna C. F.
collection PubMed
description The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country’s clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return.
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spelling pubmed-82816442021-07-16 An international policy on returning genomic research results Lewis, Anna C. F. Knoppers, Bartha Maria Green, Robert C. Genome Med Comment The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country’s clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return. BioMed Central 2021-07-15 /pmc/articles/PMC8281644/ /pubmed/34266500 http://dx.doi.org/10.1186/s13073-021-00928-5 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Comment
Lewis, Anna C. F.
Knoppers, Bartha Maria
Green, Robert C.
An international policy on returning genomic research results
title An international policy on returning genomic research results
title_full An international policy on returning genomic research results
title_fullStr An international policy on returning genomic research results
title_full_unstemmed An international policy on returning genomic research results
title_short An international policy on returning genomic research results
title_sort international policy on returning genomic research results
topic Comment
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8281644/
https://www.ncbi.nlm.nih.gov/pubmed/34266500
http://dx.doi.org/10.1186/s13073-021-00928-5
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