Cargando…
Dignity of patients with palliative needs in the Middle East: an integrative review
BACKGROUND: Patients with palliative needs experience high psychological and symptom distress that may lead to hopelessness and impaired sense of dignity. Maintaining patient dignity or the quality of being valued is a core aim in palliative care. The notion of dignity is often explained by function...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8285813/ https://www.ncbi.nlm.nih.gov/pubmed/34271909 http://dx.doi.org/10.1186/s12904-021-00791-6 |
_version_ | 1783723623304921088 |
---|---|
author | Dakessian Sailian, Silva Salifu, Yakubu Saad, Rima Preston, Nancy |
author_facet | Dakessian Sailian, Silva Salifu, Yakubu Saad, Rima Preston, Nancy |
author_sort | Dakessian Sailian, Silva |
collection | PubMed |
description | BACKGROUND: Patients with palliative needs experience high psychological and symptom distress that may lead to hopelessness and impaired sense of dignity. Maintaining patient dignity or the quality of being valued is a core aim in palliative care. The notion of dignity is often explained by functionality, symptom relief and autonomy in decision making. However, this understanding and its implications in Middle Eastern countries is not clear. The aim of this review is to 1) explore the understanding of dignity and how dignity is preserved in adult patients with palliative care needs in the Middle East 2) critically assess the findings against the Dignity Model dominant in western literature. METHOD: Using an integrative review we searched four databases EMBASE, Psych-Info, CINAHL, and PubMed. These databases retrieve a broad literature on palliative care and are often chosen in other palliative care reviews. To enhance the search strategy, three online journals were hand searched, reference lists of review papers scanned, and forward citations sought. No time limits were applied. The retrieved papers were assessed independently by two authors including quality assessment using the Hawker’s appraisal tool. RESULTS: Out of the 5113 studies retrieved, 294 full texts were assessed. Sixteen studies were included for synthesis of which fourteen were published in Iran. Seven themes were developed after data analysis: Maintaining Privacy and Secrecy; Gentle communication with a dialogue that preserves hope instead of blunt truth-telling; Abundance characterised by accessibility to medical supplies and financial stability; Family Support where relatives deliver major assistance in care; Physical Fitness; Reliable health care, and Social justice that endorses equal care to all. CONCLUSION: The results are compatible with the existing evidence from the Dignity Model ascertaining that dignity is socially mediated and influenced by interactions and physical fitness. Nevertheless, the findings highlight that patient dignity is also shaped by the socio-political, cultural, and economic conditions of the country, where family support, gentle communication and accessible health care are essential elements. |
format | Online Article Text |
id | pubmed-8285813 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-82858132021-07-19 Dignity of patients with palliative needs in the Middle East: an integrative review Dakessian Sailian, Silva Salifu, Yakubu Saad, Rima Preston, Nancy BMC Palliat Care Research BACKGROUND: Patients with palliative needs experience high psychological and symptom distress that may lead to hopelessness and impaired sense of dignity. Maintaining patient dignity or the quality of being valued is a core aim in palliative care. The notion of dignity is often explained by functionality, symptom relief and autonomy in decision making. However, this understanding and its implications in Middle Eastern countries is not clear. The aim of this review is to 1) explore the understanding of dignity and how dignity is preserved in adult patients with palliative care needs in the Middle East 2) critically assess the findings against the Dignity Model dominant in western literature. METHOD: Using an integrative review we searched four databases EMBASE, Psych-Info, CINAHL, and PubMed. These databases retrieve a broad literature on palliative care and are often chosen in other palliative care reviews. To enhance the search strategy, three online journals were hand searched, reference lists of review papers scanned, and forward citations sought. No time limits were applied. The retrieved papers were assessed independently by two authors including quality assessment using the Hawker’s appraisal tool. RESULTS: Out of the 5113 studies retrieved, 294 full texts were assessed. Sixteen studies were included for synthesis of which fourteen were published in Iran. Seven themes were developed after data analysis: Maintaining Privacy and Secrecy; Gentle communication with a dialogue that preserves hope instead of blunt truth-telling; Abundance characterised by accessibility to medical supplies and financial stability; Family Support where relatives deliver major assistance in care; Physical Fitness; Reliable health care, and Social justice that endorses equal care to all. CONCLUSION: The results are compatible with the existing evidence from the Dignity Model ascertaining that dignity is socially mediated and influenced by interactions and physical fitness. Nevertheless, the findings highlight that patient dignity is also shaped by the socio-political, cultural, and economic conditions of the country, where family support, gentle communication and accessible health care are essential elements. BioMed Central 2021-07-16 /pmc/articles/PMC8285813/ /pubmed/34271909 http://dx.doi.org/10.1186/s12904-021-00791-6 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Dakessian Sailian, Silva Salifu, Yakubu Saad, Rima Preston, Nancy Dignity of patients with palliative needs in the Middle East: an integrative review |
title | Dignity of patients with palliative needs in the Middle East: an integrative review |
title_full | Dignity of patients with palliative needs in the Middle East: an integrative review |
title_fullStr | Dignity of patients with palliative needs in the Middle East: an integrative review |
title_full_unstemmed | Dignity of patients with palliative needs in the Middle East: an integrative review |
title_short | Dignity of patients with palliative needs in the Middle East: an integrative review |
title_sort | dignity of patients with palliative needs in the middle east: an integrative review |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8285813/ https://www.ncbi.nlm.nih.gov/pubmed/34271909 http://dx.doi.org/10.1186/s12904-021-00791-6 |
work_keys_str_mv | AT dakessiansailiansilva dignityofpatientswithpalliativeneedsinthemiddleeastanintegrativereview AT salifuyakubu dignityofpatientswithpalliativeneedsinthemiddleeastanintegrativereview AT saadrima dignityofpatientswithpalliativeneedsinthemiddleeastanintegrativereview AT prestonnancy dignityofpatientswithpalliativeneedsinthemiddleeastanintegrativereview |