Cargando…

Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research

INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods desig...

Descripción completa

Detalles Bibliográficos
Autores principales: Ta Park, Van, Grill, Joshua D., Zhu, Jeanette, Nguyen, Khue, Nam, Bora, Tsoh, Janice, Kanaya, Alka, Vuong, Quyen, Bang, Joon, Nguyen, Nhi Cristina Y., Cho, In Hyang, Gallagher‐Thompson, Dolores, Hinton, Ladson, Meyer, Oanh L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8288079/
https://www.ncbi.nlm.nih.gov/pubmed/34295961
http://dx.doi.org/10.1002/trc2.12195
_version_ 1783724030658871296
author Ta Park, Van
Grill, Joshua D.
Zhu, Jeanette
Nguyen, Khue
Nam, Bora
Tsoh, Janice
Kanaya, Alka
Vuong, Quyen
Bang, Joon
Nguyen, Nhi Cristina Y.
Cho, In Hyang
Gallagher‐Thompson, Dolores
Hinton, Ladson
Meyer, Oanh L.
author_facet Ta Park, Van
Grill, Joshua D.
Zhu, Jeanette
Nguyen, Khue
Nam, Bora
Tsoh, Janice
Kanaya, Alka
Vuong, Quyen
Bang, Joon
Nguyen, Nhi Cristina Y.
Cho, In Hyang
Gallagher‐Thompson, Dolores
Hinton, Ladson
Meyer, Oanh L.
author_sort Ta Park, Van
collection PubMed
description INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. RESULTS: Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. DISCUSSION: Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research. 
format Online
Article
Text
id pubmed-8288079
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-82880792021-07-21 Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research Ta Park, Van Grill, Joshua D. Zhu, Jeanette Nguyen, Khue Nam, Bora Tsoh, Janice Kanaya, Alka Vuong, Quyen Bang, Joon Nguyen, Nhi Cristina Y. Cho, In Hyang Gallagher‐Thompson, Dolores Hinton, Ladson Meyer, Oanh L. Alzheimers Dement (N Y) Research Articles INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. RESULTS: Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. DISCUSSION: Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research.  John Wiley and Sons Inc. 2021-07-19 /pmc/articles/PMC8288079/ /pubmed/34295961 http://dx.doi.org/10.1002/trc2.12195 Text en © 2021 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals, Inc. on behalf of Alzheimer's Association. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Research Articles
Ta Park, Van
Grill, Joshua D.
Zhu, Jeanette
Nguyen, Khue
Nam, Bora
Tsoh, Janice
Kanaya, Alka
Vuong, Quyen
Bang, Joon
Nguyen, Nhi Cristina Y.
Cho, In Hyang
Gallagher‐Thompson, Dolores
Hinton, Ladson
Meyer, Oanh L.
Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title_full Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title_fullStr Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title_full_unstemmed Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title_short Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
title_sort asian americans and pacific islanders’ perspectives on participating in the care recruitment research registry for alzheimer's disease and related dementias, aging, and caregiving research
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8288079/
https://www.ncbi.nlm.nih.gov/pubmed/34295961
http://dx.doi.org/10.1002/trc2.12195
work_keys_str_mv AT taparkvan asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT grilljoshuad asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT zhujeanette asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT nguyenkhue asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT nambora asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT tsohjanice asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT kanayaalka asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT vuongquyen asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT bangjoon asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT nguyennhicristinay asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT choinhyang asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT gallagherthompsondolores asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT hintonladson asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch
AT meyeroanhl asianamericansandpacificislandersperspectivesonparticipatinginthecarerecruitmentresearchregistryforalzheimersdiseaseandrelateddementiasagingandcaregivingresearch