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Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods desig...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8288079/ https://www.ncbi.nlm.nih.gov/pubmed/34295961 http://dx.doi.org/10.1002/trc2.12195 |
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author | Ta Park, Van Grill, Joshua D. Zhu, Jeanette Nguyen, Khue Nam, Bora Tsoh, Janice Kanaya, Alka Vuong, Quyen Bang, Joon Nguyen, Nhi Cristina Y. Cho, In Hyang Gallagher‐Thompson, Dolores Hinton, Ladson Meyer, Oanh L. |
author_facet | Ta Park, Van Grill, Joshua D. Zhu, Jeanette Nguyen, Khue Nam, Bora Tsoh, Janice Kanaya, Alka Vuong, Quyen Bang, Joon Nguyen, Nhi Cristina Y. Cho, In Hyang Gallagher‐Thompson, Dolores Hinton, Ladson Meyer, Oanh L. |
author_sort | Ta Park, Van |
collection | PubMed |
description | INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. RESULTS: Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. DISCUSSION: Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research. |
format | Online Article Text |
id | pubmed-8288079 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-82880792021-07-21 Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research Ta Park, Van Grill, Joshua D. Zhu, Jeanette Nguyen, Khue Nam, Bora Tsoh, Janice Kanaya, Alka Vuong, Quyen Bang, Joon Nguyen, Nhi Cristina Y. Cho, In Hyang Gallagher‐Thompson, Dolores Hinton, Ladson Meyer, Oanh L. Alzheimers Dement (N Y) Research Articles INTRODUCTION: This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. METHODS: Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. RESULTS: Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. DISCUSSION: Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research. John Wiley and Sons Inc. 2021-07-19 /pmc/articles/PMC8288079/ /pubmed/34295961 http://dx.doi.org/10.1002/trc2.12195 Text en © 2021 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals, Inc. on behalf of Alzheimer's Association. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Research Articles Ta Park, Van Grill, Joshua D. Zhu, Jeanette Nguyen, Khue Nam, Bora Tsoh, Janice Kanaya, Alka Vuong, Quyen Bang, Joon Nguyen, Nhi Cristina Y. Cho, In Hyang Gallagher‐Thompson, Dolores Hinton, Ladson Meyer, Oanh L. Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title | Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title_full | Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title_fullStr | Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title_full_unstemmed | Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title_short | Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research |
title_sort | asian americans and pacific islanders’ perspectives on participating in the care recruitment research registry for alzheimer's disease and related dementias, aging, and caregiving research |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8288079/ https://www.ncbi.nlm.nih.gov/pubmed/34295961 http://dx.doi.org/10.1002/trc2.12195 |
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