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Acceptability of patient reported outcome measures (PROMs) in a cystic fibrosis data registry

INTRODUCTION: Improvements in the treatment of cystic fibrosis (CF) have resulted in longer survival and an increased focus on optimising daily functioning with the condition. Patient-reported outcome measures (PROMs) are valuable tools in evaluating the health-related quality of life of persons wit...

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Detalles Bibliográficos
Autores principales:	Ratnayake, Irushi, Ahern, Susannah, Ruseckaite, Rasa
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2021
Materias:	Cystic Fibrosis
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8291302/ https://www.ncbi.nlm.nih.gov/pubmed/34281916 http://dx.doi.org/10.1136/bmjresp-2021-000927

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