The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s

Detalles Bibliográficos
Autores principales: Wilkens, Marion, Bartlett, Michael, Willersinn, Frank, O'Hara, Karen, Boyd, Jeanette, Denning, Jessica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2021
Materias:
Editorials
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8291919/
https://www.ncbi.nlm.nih.gov/pubmed/34295404
http://dx.doi.org/10.1183/20734735.0340-2020
Descripción
Sumario:Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s

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