The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s

Detalles Bibliográficos
Autores principales: Wilkens, Marion, Bartlett, Michael, Willersinn, Frank, O'Hara, Karen, Boyd, Jeanette, Denning, Jessica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2021
Materias:
Editorials
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8291919/
https://www.ncbi.nlm.nih.gov/pubmed/34295404
http://dx.doi.org/10.1183/20734735.0340-2020
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author Wilkens, Marion
Bartlett, Michael
Willersinn, Frank
O'Hara, Karen
Boyd, Jeanette
Denning, Jessica
author_facet Wilkens, Marion
Bartlett, Michael
Willersinn, Frank
O'Hara, Karen
Boyd, Jeanette
Denning, Jessica
author_sort Wilkens, Marion
collection PubMed
description Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s
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spelling pubmed-82919192021-07-21 The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs Wilkens, Marion Bartlett, Michael Willersinn, Frank O'Hara, Karen Boyd, Jeanette Denning, Jessica Breathe (Sheff) Editorials Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s European Respiratory Society 2021-03 /pmc/articles/PMC8291919/ /pubmed/34295404 http://dx.doi.org/10.1183/20734735.0340-2020 Text en Copyright ©ERS 2021 https://creativecommons.org/licenses/by-nc/4.0/Breathe articles are open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.
spellingShingle Editorials
Wilkens, Marion
Bartlett, Michael
Willersinn, Frank
O'Hara, Karen
Boyd, Jeanette
Denning, Jessica
The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title_full The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title_fullStr The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title_full_unstemmed The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title_short The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
title_sort patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
topic Editorials
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8291919/
https://www.ncbi.nlm.nih.gov/pubmed/34295404
http://dx.doi.org/10.1183/20734735.0340-2020
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