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The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s
Autores principales: | Wilkens, Marion, Bartlett, Michael, Willersinn, Frank, O'Hara, Karen, Boyd, Jeanette, Denning, Jessica |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
European Respiratory Society
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8291919/ https://www.ncbi.nlm.nih.gov/pubmed/34295404 http://dx.doi.org/10.1183/20734735.0340-2020 |
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