Measuring health-related quality of life in patients with rare disease

BACKGROUND: There has been a growing emphasis on health-related quality of life (HRQoL) as an important outcome in rare disease drug development, although its assessment may be useful outside the drug development context, including in clinical applications or natural history studies. Central to asse...

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Detalles Bibliográficos
Autores principales: Lenderking, William R., Anatchkova, Milena, Pokrzywinski, Robin, Skalicky, Anne, Martin, Mona L., Gelhorn, Heather
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8292508/
https://www.ncbi.nlm.nih.gov/pubmed/34283357
http://dx.doi.org/10.1186/s41687-021-00336-8

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8292508/
https://www.ncbi.nlm.nih.gov/pubmed/34283357
http://dx.doi.org/10.1186/s41687-021-00336-8

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