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Patient-reported impact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG)
INTRODUCTION: Myasthenia gravis (MG) is a rare, chronic, autoimmune disease, mediated by immunoglobulin G antibodies, which causes debilitating muscle weakness. As with most rare diseases, there is little patient-reported data with which to understand and address patient needs. This study explores t...
Autores principales: | Berrih-Aknin, Sonia, Claeys, Kristl G, Law, Nancy, Mantegazza, Renato, Murai, Hiroyuki, Saccà, Francesco, Dewilde, Sarah, Janssen, Mathieu F, Bagshaw, Emma, Kousoulakou, Hara, Larkin, Mark, Beauchamp, Jon, Leighton, Trevor, Paci, Sandra |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8292816/ https://www.ncbi.nlm.nih.gov/pubmed/34285010 http://dx.doi.org/10.1136/bmjopen-2020-048198 |
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