Disease Severity and Motor Impairment Correlate With Health-Related Quality of Life in AP-4-Associated Hereditary Spastic Paraplegia

OBJECTIVE: AP-4-associated hereditary spastic paraplegia (AP-4-HSP) is a childhood-onset neurogenetic disease and mimic of cerebral palsy. Data on health-related quality of life (HRQoL) are lacking. To establish a metric for HRQoL and caregiver priorities, we used the Caregiver Priorities and Child...

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Detalles Bibliográficos
Autores principales: Jordan, Catherine, Geisel, Gregory, Alecu, Julian E., Zhang, Bo, Sahin, Mustafa, Ebrahimi-Fakhari, Darius
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8293284/
https://www.ncbi.nlm.nih.gov/pubmed/34295967
http://dx.doi.org/10.1212/NXG.0000000000000605

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