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The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science

In comparison with other regions, dementia prevalence in Latin America is growing rapidly, along with the consequent clinical, social, and economic burden upon patients and their families. The combination of fragile health care systems, large social inequalities, and isolated clinical and research i...

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Autores principales: Ibanez, Agustin, Parra, Mario A., Butler, Christopher
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8293660/
https://www.ncbi.nlm.nih.gov/pubmed/33492297
http://dx.doi.org/10.3233/JAD-201384
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author Ibanez, Agustin
Parra, Mario A.
Butler, Christopher
author_facet Ibanez, Agustin
Parra, Mario A.
Butler, Christopher
author_sort Ibanez, Agustin
collection PubMed
description In comparison with other regions, dementia prevalence in Latin America is growing rapidly, along with the consequent clinical, social, and economic burden upon patients and their families. The combination of fragile health care systems, large social inequalities, and isolated clinical and research initiatives makes the coordination of efforts imperative. The Latin America and the Caribbean Consortium on Dementia (LAC-CD) is a regional organization overseeing and promoting clinical and research activities on dementia. Here, we first provide an overview of the consortium, highlighting the antecedents and current mission. Then, we present the consortium’s regional research, including the multi-partner consortium to expand dementia research in Latin America (ReDLat), which aims to identify the unique genetic, social, and economic factors that drive Alzheimer’s and frontotemporal dementia presentation in LAC relative to the US. We describe an extension of ReDLat which aims to develop affordable markers of disease subtype and severity using high density EEG. We introduce current initiatives promoting regional diagnosis, visibility, and capacity, including the forthcoming launch of the Latin American Brain Health Institute (BrainLat). We discuss LAC-CD-led advances in brain health diplomacy, including an assessment of responses to the impact of COVID-19 on people with dementia and examining the knowledge of public policies among experts in the region. Finally, we present the current knowledge-to-action framework, which paves the way for a future regional action plan. Coordinated actions are crucial to forging strong regional bonds, supporting the implementation of regional dementia plans, improving health systems, and expanding research collaborations across Latin America.
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spelling pubmed-82936602021-08-05 The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science Ibanez, Agustin Parra, Mario A. Butler, Christopher J Alzheimers Dis Multicenter Study In comparison with other regions, dementia prevalence in Latin America is growing rapidly, along with the consequent clinical, social, and economic burden upon patients and their families. The combination of fragile health care systems, large social inequalities, and isolated clinical and research initiatives makes the coordination of efforts imperative. The Latin America and the Caribbean Consortium on Dementia (LAC-CD) is a regional organization overseeing and promoting clinical and research activities on dementia. Here, we first provide an overview of the consortium, highlighting the antecedents and current mission. Then, we present the consortium’s regional research, including the multi-partner consortium to expand dementia research in Latin America (ReDLat), which aims to identify the unique genetic, social, and economic factors that drive Alzheimer’s and frontotemporal dementia presentation in LAC relative to the US. We describe an extension of ReDLat which aims to develop affordable markers of disease subtype and severity using high density EEG. We introduce current initiatives promoting regional diagnosis, visibility, and capacity, including the forthcoming launch of the Latin American Brain Health Institute (BrainLat). We discuss LAC-CD-led advances in brain health diplomacy, including an assessment of responses to the impact of COVID-19 on people with dementia and examining the knowledge of public policies among experts in the region. Finally, we present the current knowledge-to-action framework, which paves the way for a future regional action plan. Coordinated actions are crucial to forging strong regional bonds, supporting the implementation of regional dementia plans, improving health systems, and expanding research collaborations across Latin America. IOS Press 2021-06-22 /pmc/articles/PMC8293660/ /pubmed/33492297 http://dx.doi.org/10.3233/JAD-201384 Text en © 2021 – The authors. Published by IOS Press https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Multicenter Study
Ibanez, Agustin
Parra, Mario A.
Butler, Christopher
The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title_full The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title_fullStr The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title_full_unstemmed The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title_short The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science
title_sort latin america and the caribbean consortium on dementia (lac-cd): from networking to research to implementation science
topic Multicenter Study
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8293660/
https://www.ncbi.nlm.nih.gov/pubmed/33492297
http://dx.doi.org/10.3233/JAD-201384
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